Hi Mary, Tina and all. We met with Dr. Feldman a week ago Monday. He is indeed a very kind and very knowledgeable man. He had just returned from Chicago...
Linda I am so happy that you got to speak to Dr. Feldman and that he was
able to help! He recommended that I try stopping the pot use as well - but when I did...
My son has not had an eposide since October-8 months nor does he have any nausea. It completely went away went he stopped smoking on a daily basis. ...
If it is indeed cannabanoid hypermesis in my son's case too, the next hurdle for him will be getting back into society again. He's been debilitated by these...
Make sure that he does completely quit for 6 weeks because that is how long it takes to detox your body. I hope it works. Once he starts feeling better, I...
Hi All - New development for my son... LONG STORY very short... After years of pain and severe migraines, NEW Neuro. sent son to the Pain Clinic at our local...
Terry, this is incredible news! What a relief for your son not to have to
suffer so terribly anymore. We're going to see Dr. Li again in August and I
m going...
Kristine - ... I am not sure how long it will last but am so thankful for the reprieve! He has not had a CVS episode since March. In March he had two and had...
Thanks for that warning about Neurontin. That's pretty scary. My husband
seems to be doing well on it so far, but he's not up to his theraputic dose
yet, so...
My 8 year old daughter suffers from CVS and I wanted to know if anyone else out there gets servere chest pains on the lead up to an episode. She gets so sore...
Hi Everyone! I am new here and just figured I would introduce myself. My name is Nicole and I am the mother of two girls. We adopted our oldest daughter who...
Hi Nicole, My name is Patty. I'm from Australia and I completely understand the frustration you are feeling with this. My daughter Bianca is now 8 and has been...
Hi, I don't have any answers either. I do have a 12 yr old daughter who started with the vomitting at age 4 and was not diagnosed until she was 9 with CVS. She...
Hello everyone. My name is Mellisa and my fourteen year old daughter has cvs. It took three years to diagnose her. for the first year they kept telling us she...
Hi Nicole and Welcome to our group :) I am sorry - I can't be of much help when it comes to the pediatrics CVS. All of my children never suffered, nor did I...
I thank everyone for their replies. Please know that even if you don't have any advice, it is so nice having people in my life who understand and know what I...
Hi Nicole, (quote) Her neurologist told us that was a good sign, that the earlier the head aches came on, the more likely she would grow out of CVS at an...
I am an Occupational Therapist and a mom of an 11 yr old twin with CVS.....Your child definitely has a sensory integration problem....those are classic...
Hi Jennifer! That is very reassuring, although I am sorry that your daughter has the migraines too but like you I prefer the headaches over the CVS. Your...
I have suffered from CVS since I was five years old. I am a 28 year old female and I still suffer from CVS but there is hope. I too suffered violent and...
Are you able to push past them at times now ? curious.... ... From: apunches87 <apunches87@...> Subject: [Cyclic Vomiting Syndrome] I suffer from CVS To:...
Hi Nicole, My daughter started her vomitting episodes at age 5. She also has lots of anxiety, ocd, and sensory integration disorder. I did not get her CVS...
Yes. When I do have an episode it only lasts a day. The easiest way for me to stop an episode is going to the ER. There I get an IV going and they give me...
Thank you Judy. That does bring relief. Elena was have an episode every 4 weeks on the dot and we could set our alarm clocks to when it would start, but she...
That is amazing Angela! I need to get an ER plan written up from our dr as well. They give my daughter the same meds through IV along with fluids and so far...
My wifes CVS is now being treated as migrains and now takes propranolol, she is episode free since she started taking it, also she Has felt episodes coming...
Is that a specific migraine med or is it used for anxiety as well? ... From: <iansinger@...> To: <cyclicvomitingsyndrome@yahoogroups.com> Sent: Friday,...
For anxiety as well and has really help her. Clammy hands are gone too. Sent on the Sprint® Now Network from my BlackBerry® ... From: "Nicole Kittelson"...
Yes I believe the antiacids do help me it helps keep my stomach calm. I also take vitamin b-6 daily and 1-2 capsules of diphenhydramine (benadryl) every...
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