Hi! Thank you so much for your in-depth posting. Although my son smokes at least a couple times each day he has never felt the urge or need to take a hot...
I just wanted to mention that my understanding is that the hot showers is common to many CVSers, not exclusively related to pot smoking.... ... From:...
I hope that after you see Dr feldman you post any important info that he
shares with you regarding this issue. Dr feldman is my "cvs" Dr too - and I haven't...
Just weighing in on the subject. My adult child smoked for many a years. It helped. No showers or tub sitting were ever done. Years of specialist after...
Yep, you're right. I'm aware of that but it also appears to be a very specific symptom of cannabis toxicity from what I've read and heard from people who...
yo man, my name is max, mary wards son. i had the exact same problem as you. trust me i didn't beleive pot could have anything to do with this disorder...
Hello, My name is Judy and I joined this group because my 12 yr old daughter was diagnosed with CVS at age 9. I am looking for support. I have been going crazy...
I also have ason with CVS. He has Aprexia( speech) SID senoery ing. Brandon was getting sick ( vomiting for 5-10 time)take nap then wake up fine . Dr. was...
Have you ever kept track of her episodes? Some kids have triggers, some are 'cyclers', and some do both. Like my son, he's a 'cycler'...he would vomit once a...
whoops...sorry i meant, until he was vomiting once a WEEK. He's since went back up so that now he's more into the migraine stage, but he still has some...
Hi Kerri, I'm glad you shared this. I've done the same thing for the past couple of years, and I've seen patterns in timing and triggers that I'm pretty sure I...
Hi Kerri, Her episodes are so sporadic, I do think the only way to keep track would be to have a journal. I still can't believe that all this time her symptoms...
... There is medication that can help with this. My son cannot have any dairy before a car trip or he will vomit and be car sick. Just a thought... Terry...
Judy - I am so glad you found this group. I hope we can be helpful to you. I have two children with CVS. My DD has had episodes in the middle of the night...
Hi Terry, Thank you so much for the warm welcome!!!! Someone had told me these were like migraines in the stomach, that is why they are so unpredictable. I...
Judy - My daughter did the same thing as your daughter. Yes, it is awful and unpredictable. The Neuro. told me it could be stomach migraines for my son. A...
What an excellent idea to videotape the episode...my husband has mentioned doing this several times but never followed through- my son's episodes sound very...
Terry, Thank you for sharing with me! I'm so sorry you have to go through this too! Can I ask , does your son have diarhea too? When my daughter has her...
hey max. i'm happy to hear from ya. it's been over a month since i smoked. since april 16th it was a thursday. ahhh.! i haven't had an episode yet. which is...
Thanks for your response. When I first joined this group I was just desperate to see if anyone else was told it was caused by pot smoking like us. Max was...
Hi Mary, Tina and all. We met with Dr. Feldman a week ago Monday. He is indeed a very kind and very knowledgeable man. He had just returned from Chicago...
Linda I am so happy that you got to speak to Dr. Feldman and that he was
able to help! He recommended that I try stopping the pot use as well - but when I did...
My son has not had an eposide since October-8 months nor does he have any nausea. It completely went away went he stopped smoking on a daily basis. ...
If it is indeed cannabanoid hypermesis in my son's case too, the next hurdle for him will be getting back into society again. He's been debilitated by these...
Make sure that he does completely quit for 6 weeks because that is how long it takes to detox your body. I hope it works. Once he starts feeling better, I...
Hi All - New development for my son... LONG STORY very short... After years of pain and severe migraines, NEW Neuro. sent son to the Pain Clinic at our local...
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