Hello all I'm a new member to this online community and I would like to just say thank u to all for the support I'm so glad this group is on here. Of took me...
I dunno...I'm reading this and I don't think that's it....are you SURE you're not PREGNANT??! lol Sorry...had to.... Welcome! I'm glad to hear you've finally...
Do any of your children have problems with discolored teeth? My son's two front teeth are discolored and have some enamel coming off of them. The doctor and...
Hello all, I am new here. We have a 16 year old son recently diagnosed with CVS. We had been searching for a diagnosis for quite some time. His episodes have...
That is awesome. CONGRATS!! I know it is such a relief to finally have confirmation about what is going on. I do have questions about labs if you are...
Kerri - ... You're terrible!!! LOL 0;) I do not have CVS but my kids do. However, I have been having nausea episodes. It is quite funny when someone asks...
Missy - My 12wo DS has horrible teeth issues. Even if you brush after the vomitting, the teeth are still being hit by those acids. I was told by our dentist...
Hello terry! It does to me suffering it your son so badly goes in such a way!! You already medicines for the psyche tried?? Even if it does not have...
Susanne - Thank you so much. My son is currently on Amytriptyline for his migraines. He was going so well with episodes once every 3 months. We changed his...
Dear terry ! My doughter takes saroten 10 mg ( = Amitriptylin )every evening and vertirosan ( by nausea ) and on a day when she never fell good ( earhurt and...
I was told that you should never brush your teeth after vomiting. The acid from the vomit makes the enamel very soft and brushing will remove the enamel....
I have a 10 yr old daughter that was diagnosed with CVS many years ago. Years past, Zofran used to be our wonder drug. It would stop an episode immediately....
My son 26 has CVS we live in Arizona in the Phoenix area. Does anyone know of anyone who actually knows how to treat CVS around here. He has not been able to...
Hi there, my daughter is 7 and has had CVS since around age 2. She also takes zofran w/ mixed results. However, we now have several other options as well. I'm...
my wife has CVSabd her doctor put her on anxiety med for everyday use, and when she gets sick they are now using zofran and composine along with valume to...
... Zofran has stopped working for me alone so when I go to the er they give me zofran and compazine together and benedryl which knocks me out. the trick is...
Ok, I'm interested here, I thought Benadryl was for allergies, can anyone explain to me why this is being used for CVS and how it works,etc? Kerri [Non-text...
It can help with nausea. They gave it to my son when he was in the hospital. Kim ________________________________ From: Kerrandda <kerrandda@...> To:...
Benadryl is used to put you to sleep. It makes my 10 year old son sleepy,
but he hallucinates on it so we can't use it. Zofran doesn't work alone for Devin...
Hi - I am a new member. My daughter is almost 9 and was just diagnosed with CVS. I have been to CVSA online and read everything I could find. My daughter...
Kristine - It must be nice to be able to do the IV at home. My son has only been hospitalized twice now and it is getting old already. I am in awe of all of...
That's a really good protocol Terry. Get used to the hospitalizations though
unless his more frequent cycles start to space out a bit. If they don't,
consider...
Hi! Zofran is still working for my daughter, but when the episodes are really bad I give her Tigan. If we are in the ER, she gets a shot of Tigan. If we are...
Hello, I have come here hoping to find some answers for what I have been experiencing. CVS was recently discussed on another message board I am on and it was...
I'm the mother of a CVSer- so I don't know first-hand- but it does sound like CVS to me- (stress, fatigue etc. are known to trigger episodes)- you might want...
Thank you so much! Debbie David15 months, 15 % Pancreatectomy 11/7/08, No Meds , Washington Rebecca Age 11, no HI Lily Age 5 , no HI Anna Age 4, no HI To:...
Hi my daughter has CVS and I am told it is the worst case ever and was wondering or looking for other parents to talk to about this my daugher is 7 years old...
You can talk to us here, or email me at mama4jesus@.... This is a
supportive group to get answers from. Dr. Li said my son has one of the
worst cases...
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