Hi All - I am posting this on several groups to see if anyone has any suggestions. Please forgive me for cross-posting! I am incredibly frustrated for my son....
My 8 year old daughter is very similar in that situation. It sounds like she may not have episodes as frequently as your son, but she dehydrates very...
I wish I could help, but my son doens't dehydrate very much. My only thought I wanted to ask was does he sweat at all? My nine year old (CVS'er) plays hockey...
Hello. I'm a 28 year old CVSer and just wanted to tell you how I feel when I'm sick. I too, like you son, get dehydrated very fast. I have no warning...
It took almost 4 yrs & trips to Charlottt medical center, Syracuse, Wake Forest, & Johns Hopkins University's and no one knows what to do for My 39 year old...
Thank you so much for sharing this. My daughter, who is 9, has CVS. We are hoping she's outgrowing it now but we're still cautious. It's nice to hear the...
The GI told us that if we can make him sleep then the sleeping breaks the cycle. Thanks for writing and letting me know from your point of view! Terry...
Kerri - I found this in my quest for answers today... Anhidrosis — Comprehensive overview covers symptoms, causes, treatment of this inability to sweat...
I know kids start to sweat at different ages and that could just be it...but speaking from my point of view, I sweat, but not in my face for some reason. I...
Kerri - In my fact finding mission today, I came across a disorder that I will talk with the GI and ped. about. Anhidrosis Anhidrosis — Comprehensive...
This is very interesting- My husband (who does not have CVS) probably does have this disorder (does not sweat anywhere excetp his feet)- My son has CVS- on a...
about your 12 yo son. It sounds like my son a little over a year ago. He is turning 15 next month so he would have 13 at the time. I read a portion of your...
First i would like to say Hello My name is Nicole, i am here because my aunt is very ill and no one at the hospitals seem to know whats wrong. so i have been...
Nicole - Welcome. Just a thought... I read a book called "The Gluten Free Girl" in which the author wrote about her unknown illness and figuring out she had...
Thank you Terry, I will look in to this furture, however she has only been eating fruit and veggies but can not keep any thing down she is now worse. she is in...
What does your aunt's doctor thnk about all this. They can admit her for observation, etc. Has she seen a GI Dr.? An ER will only do emergency work on a...
She is back in the hospital called 911 after she started to have a sesure. she has been in there for a day and they already want to send her home and then put...
Hi All - Tuesday was a difficult day for us. My son had an episode and we took him to the hospital. Today is Thursday and we will be released sometime today....
Terry, I know how you feel! It's so nice to be home again after a hospital
stay. And even better when your child is well again! What a blessing!   ...
Hello all I'm a new member to this online community and I would like to just say thank u to all for the support I'm so glad this group is on here. Of took me...
I dunno...I'm reading this and I don't think that's it....are you SURE you're not PREGNANT??! lol Sorry...had to.... Welcome! I'm glad to hear you've finally...
Do any of your children have problems with discolored teeth? My son's two front teeth are discolored and have some enamel coming off of them. The doctor and...
Hello all, I am new here. We have a 16 year old son recently diagnosed with CVS. We had been searching for a diagnosis for quite some time. His episodes have...
That is awesome. CONGRATS!! I know it is such a relief to finally have confirmation about what is going on. I do have questions about labs if you are...
Kerri - ... You're terrible!!! LOL 0;) I do not have CVS but my kids do. However, I have been having nausea episodes. It is quite funny when someone asks...
Missy - My 12wo DS has horrible teeth issues. Even if you brush after the vomitting, the teeth are still being hit by those acids. I was told by our dentist...
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