I've had cvs from 1985 up until 2007. Millions of dollars in tests and years of hospitalization still nothing worked. Then in 2007 I had bad sinuses so I took...
Thanks for the info., and I'm very sorry to hear you've been diagnosed with CVS. It's great to know that your "cocktail" is continuing to do the trick for you....
Thanks for the info., and I'm very sorry to hear you've been diagnosed with CVS. It's great to know that your "cocktail" is continuing to do the trick for you....
Hi, I forgot, sorry to leave out this info.....I also take 200 mg of vitamin b6, among other things it helps maintain the coating that surrounds the nerve...
Hi all, I've been going crazy with CVS for a few years now...before that i rarely vomited...i went for over 20 years without vomiting until a few years ago and...
Looking for support. I am 44 and have been vomiting every 1-2 months for one and one-half years now. Been to the ER twice for replacement fluids. The ER...
It is my son -not me who has CVS but from what I can tell at least at the onset he just wakes up vomiting without nausea... as the cycle progresses I have to...
Wow, I can't imagine CVS without nausea, but it certainly could be possible.
My son is so nauseated that we have to hit him with 10mg Zofran, 1.5mg of...
Well, the ER doctor told me that, that is what it sounds like to him because my symptoms disappear as fast as they come, and I am extremely hungry and thirsty...
I sometimes wake up in the middle of the night and begin vomiting. Over the months though, it hits me first thing in the morning. I probably look nauseated...
My daughter who is 11 with CVS doesnt feel nausea when she throws up....she often goes almost right away to bile....we use zofran but it really doesnt work too...
My son, Eric 20 y/o is diagnosed with CVS, he has also been diagnosed with "idiopathic gastroparesis". Apparently the two diagnosis are "common" to people with...
mothrotwins, Maybe her Gastro can give her promethazine? It is another anti-emetic. I believe maybe the generic for phenergan? My son also used Zofran and No...
Ashley - I have two children with CVS. Both present very differently. My son gets very nauseated but my daughter does not. My dd usually ran a fever during...
My name is Kelly and my son Ben who is 5 has CVS. I feel very alone in this, as it seems to kind of be a made up sickness/disease. Between episodes it seems...
First of all, you are not alone. Hopefully people will share their
experiences and how they cope with CVS. My son is 10 now and had his first episode at 13...
Thank you Kristine for writing me back. It has been a trial trying to find someone who can relate. Ben's episodes seem to be more frequent now and more...
You know, to me it seems strange that a CVS'er can vomit and not have to go
to the hospital because of it. I can't imagine Devin only vomiting three
times and...
Hey Kelly, You should go to the website cvsaonline.org. This is a great resource for you and please look up a cvs specialist in your area. CVS is just too hard...
Just wanted to share that my son is able to get through episodes at home even though symptoms are severe.. we were hospitalized one time and my son and I found...
I am sorry that your son has a rough go of it. Glad that he can endure at home. We had to go to the hosp. for 48hrs when we thought that it was seizures. We...
Susan, The dr. that we are going to gave me this website when he diagnosed Ben w/ it. I am fairly sure that our dr. is a good one for now. I will look into...
Hi Kelly, I know how you feel! My daughter Gabriella is 7, and I too thought it sounded like a "made up" illness. Unfortunately my daughter is disabled with...
Cyclic Vomiting Syndrome - A place to talk about Cyclic Vomiting Syndrome It's been a long time since I've talked on here, I mostly just listen. Kristin...
Kerri, Thanks for posting your story. Your son sounds a lot my son in the zoney part anyways. Ben's episodes aren't horrible, just tiresome and disruptive to...
I just had to respond to this post, even though I also don't post on this list very often. Mostly because our situation is mostly migraines these days,...
Hello! I recently joined this group b/c of my 7-year-old daughter's CVS. We've also never been to the hospital but have been very close. It's interesting ...
When he was younger, it was a lot more difficult to pick out...but now...lol...you can really tell when he's 'zoney'! Good in the way that it helps us prepare...
It was nice to hear from others who are more in the same situation as we are here too! I didn't know anyone (up til now) who had younger kids with more...
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