Let me give you all a run down of my son's experience with CVS and then ask if there's anyone experiencing what we are. My son is 8 years old and started...
Hi! My daughter has gone through the same thing. She first started taking Periactin. That helped, but she had bad side effects. We are now giving her...
hi! I'm 24 yrs. old and i have had CVS for the last three years. my doctor said that i have low tolerance of stress. what i've noticed is every time i'm...
I am certainly not a child...but your son's episodes sound somewhat familiar to me too. I have not had an episode since i was diagnosed with Celiac Disease and...
... RSD is reflex sympathetic dystrophy, it is best explained as a neuro vascular severe pain disorder usually tiggared by a phisical trauma to a limb. My...
Rebecca - Thanks for the RSD information. My 12 yo ds is having horrible pain in his right thigh and hip. I am wondering if this is what is going on. HHMM......
That is very fascinating to read !! i just took my 11 yr old girl with CVS to the dr . Friday for terrible hip and thigh pain on her left....she has been...
Hi Vicki-- Very interested in your post! My son has also had CVS since about 6 mos. old and it has gradually changed in a very similar way to your daughter.......
Hi! I am brand new to this group. My almost 7-year-old daughter has had CVS since she was about 2. However, her last two episodes have been much, much worse...
Erin if you go to CVSAonline.org they will send you a list of Dr's in your
area - simply make a request :) I hope that helps and that your daughter feels...
Hello from Austria! My daughter Carolina (9 years) had now since beginning of the income ( since april ) of Saroten 10 mg no more episodes, can we hope for a...
This will be a long post. I am a CVS sufferer and I have two children who have suffered from CVS. I am 57 years old and had CVS as a child. As an adult I...
I am so sorry to hear how your whole family suffers from this monster of a
disease! My 10 year old son has it too. You said that your daughter has no more...
Thank you for the suggestion. I have thought of this but the docs at the hospital where she is being treated are not very cooperative. They are doctor gods...
HI, MY NAME'S MICHELE AND I'M A PUKAHOLIC. I'M 38 AND I'VE HAD CVS FOR ABOUT 5 OR 6 YEARS NOW EVER SINCE I WAS HAVING DENTAL PROBLEMS AND BEING OVERLOADED...
hi folks---i am hoping you can help me with a quick question. i made an online friend a few months ago who, shortly after we started talking, told me she had...
Oh dear, it sounds a bit troubling. I have no idea why she disappeared so
suddenly like that. For my son, we have about a week or even two of warning
time...
kristine thanks for the reply---i wonder the same thing about the pregnancy, if that has made things worse for her, or something has happened concerning that....
My daughter has recently been diagnosed with CVS, and our doctor put her on Periactin which didn't help her at all. My husband suggested trying Sea Bands,...
Dear listers, My son, who has autism and now age 11, has suffered with bouts of vomiting over the years. From age 2-5 he basically had 2 episode a year during...
I don't think it's all that unusual to have a long break before his episodes started up again. My son had his first episode at 13 months, then nothing until he...
NOT SO!!!!!!!!!!!!!!! My dughter went from 12 to 17 and has been actually worst as an adult than as a child. I also went several years and have suffered on...
Just wanted to bop in and say that Rebecca is still in the hospital It will be day nine tomorrow. The vomiting is better but her stomach is still not...
I'm so sorry to hear that. I know how discouraging the long wait to get better can be. Let her take it slow though. I'll keep your daughter and you in my...
Hi there, I wrote a few days ago looking for a physician recommendation in the DC area. I also called CVSA and got a name, but I called and unfortunately he...
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