Hello, I am new here, our daughter Katie is 7 yrs old and has a rare chromosome abnormality called Tetrasomy18p. She has been doing something odd for over a...
... Hello, yes my son is 9yrs old and has CVS, hes had it since he was an infant, he has both Adominal migrains and head migrains. Anything can set it off,...
What does the Depakote do? Does it keep the CVS or the migraines from coming on? You know there's been a few times when right before bed she's been on the...
Hi, well depakote is a long term medication, basically he may be on it for the rest of his life...I will tell you this though.. he was having episodes every...
Hi Lorraine, I too have a 7 year old daughter with Inverted Duplication 8p and CVS. She started her CVS when she was approximately 2 years old. The only thing...
I'm 59 and have had the symptoms for about two years now. I still do not have a diagnosis of CVS but my dr. is convinced that this is what i have. I'm still...
I didn't see the original of this but I am 45, got diagnosed last year after
4 years of episoding and testing and everyone telling me there was nothing
wrong...
They are attributing my son's CVS to chronic cannibus abuse. Not sure if that could be something that is going on with you but would love to help if it is a...
My daughter suffered for many years before being told she has CVS (almost 2 years ago). With medication she was lucky enough to go several months without a...
Thank you for sharing this WONDERFUL story!! It gives me hope. My episodes are every three to six weeks and i want very much to sing in our church choir ...
Thanks for sharing such great news!!! and congratulations to your daughter! Can I ask what med has been working well for her? thanks, Mimi ... From:...
That is odd since cannibas is often used to decrease nausea! and I've heard of CVS'ers who use it to do so- and have known many individuals who have abused...
Whomever is telling you that is DEAD WRONG! I was diagnosed by Dr. Feldman at Cedars Sinai in CA and he is one of the Founding Dr's" of CVS Care, I asked him...
That is AWESOME ! Kudos and Congrats to your daughter!!! ... From: lisalangford2 Date: 11/16/2008 6:05:43 PM To: cyclicvomitingsyndrome@yahoogroups.com ...
Thanks for sharing your good news with us, and congratulations to your daughter. What are the meds she takes and the dosages. **************You Rock! One month...
My son has had over 10 different doctors tell him that about marijuana?? They say it is a new and very rare theory with a reverse reaction to pot. Type in...
This is fascinating! Will be interesting to see what happens when he quits (if he can)- Interesting also that this study mentions "compulsive warm baths"- this...
Exactly the ONLY study that has been done is so completely inconclusive it's
wrong that Dr's have referred to it. In my case, I did stop for about 4 months -...
Thanks for your comment. I am not going to share this with my son because I want him to test the theory. At age 18, I am not trying to get him to stop for...
My son is now 23. He was diagnosed with CVS when he was 19. He's been a pot head since 18...so he says. :| It helps him when he feels the CVS is coming, which...
Thanks for your comments. I am still so confused why numerous doctors told him to stop? Like I said earlier I don't care if he smokes he's 18, I only want...
Hi, I found out last week that I have to have 3 of my wisdom teeth cut out. Has anyone had their's removed since they have been suffering with CVS? I am afraid...
Holly - My son had his tonsils out and it triggered a CVS episode when he woke up. Make sure you have a medical plan in place in case a CVS episode is...
The first thing I asked the specialist was why in the world did he want to subject me to a series of tests to rule out illnesses in which I do not have...
That is VERY WELL Stated!!! I agree with you on so many levels. And I know what you mean about being
fired. Luckily my "cvs" Dr. Declared me disabled. BUT I...
Yup, there is a lot of truth to what you say...however, i have to say that in MY CASE in testing me to rule out everything under the sun, it was found that i...
www.garynull.com Gary has a radio talk show that caught my ear several years ago when every one at school wanted my kids on ridilan or prozac. His books are...
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