Just a note to see how everyone is going. The list is pretty quiet and I would like to hear how things are going. My son's last full episode was in Nov/Dec...
hey everyone!! i'm super happy to be doing so GOOD for the last 6 months. I still take REMERON 15mg every other night and THORAZINE 50mg half the tablet every...
Hi, My name is Holly and I'm 20 years old. I was diagnosed with CVS this past June, and was also diagnosed with gastroparesis back in April. I always got sick...
Hi Holly... Though our reasons for being in this group are horrid (CVS isn't exactly a
great group to be in) welcome to the group :) My name is Tina and I am...
Tina, I'm sorry it took so long to figure out what was making you sick. I'm sorry you don't have any warning signs. Sometimes I wake up in middle of the night...
Holly - Welcome to the group. I am so glad you found us. Living with CVS can be a nightmare for many. It is immportant to find others who understand and can...
Terry, Thank you for responding! It's so good to hear from others who understand! I never really drink a lot of Gatorade. Maybe I will give that a try =)...
I'm Debi, 59 in Florida. I have not yet been diagnosed with CVS but through much research i'm pretty sure that will be my diagnosis. I have had such severe...
Hi Debi-- So sorry you've had to find us here : ( Yes- cycles triggered by stress and lack of sleep is common with CVS-- Someone on this list might be able to...
Thank you Mimi! I'll bet you even know how i've thought i'm crazy for the past coupleof years... Everyone else i've talked to about this thinks so anyway. ;~/...
Debi - I am so glad you found us. I hope we can be of help to you! We were able to get a correct diagnosis for my two children through a GI who treated CVS....
GOD BLESS YOU TERRY!! Thank you so much for your valuable information!!! debi ... -- <3<3<3<3<3<3<3<3<3<3<3<3<3<3 gramadeb2@... Princess Debi Savage ...
Hi, I am pretty sure my wife has CVS. She is a type 1 diabetic who has been diagnosed with gastroparisis. While we know that she does have gastroparsis, I...
I'm not sure that this was sent to the person you intended it to be sent to. I am Amy and I have recently joined the Yahoo group. My husband is the CVSer...
I also have gastroparesis along with the CVS. I get a lot worse when my period comes around too. I have started on birth control pills to help, but I haven't...
This is an annual walk event we have gone to for CVS , this week in Connecticut, Oct . 18th.....by the Koch family....it is nice to meet others with it and my...
hi pug!: ) I have asked my Dr. regarding my period because every time i get my episode it's always in time of my period but the Dr. said that that has nothing...
It is a great event- at a very beautiful spot! Unfortunately we will miss this year because it is scheduled exactly when my son is due for his 7 week cycle : (...
I don't have CVS- my son does- (no periods)-- but at the conference near Boston this summer- the experts said CVS triggered by periods is common! so your dr....
Hello, I am new here, our daughter Katie is 7 yrs old and has a rare chromosome abnormality called Tetrasomy18p. She has been doing something odd for over a...
... Hello, yes my son is 9yrs old and has CVS, hes had it since he was an infant, he has both Adominal migrains and head migrains. Anything can set it off,...
What does the Depakote do? Does it keep the CVS or the migraines from coming on? You know there's been a few times when right before bed she's been on the...
Hi, well depakote is a long term medication, basically he may be on it for the rest of his life...I will tell you this though.. he was having episodes every...
Hi Lorraine, I too have a 7 year old daughter with Inverted Duplication 8p and CVS. She started her CVS when she was approximately 2 years old. The only thing...
I'm 59 and have had the symptoms for about two years now. I still do not have a diagnosis of CVS but my dr. is convinced that this is what i have. I'm still...
I didn't see the original of this but I am 45, got diagnosed last year after
4 years of episoding and testing and everyone telling me there was nothing
wrong...
They are attributing my son's CVS to chronic cannibus abuse. Not sure if that could be something that is going on with you but would love to help if it is a...
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