I would have the following question: are there CVS patients; those again became completely healthy???? Please report it to me these stories !! Thanks and lg...
Hello there, Im replying to the message: Has anyone had CVS, and completely recover from it... Well Im a CVS recoverer.. I wasnt actually tittled or diagnosed...
Wow! Good news for you. I'll send good thoughts out into the universe for your son. Did the Drs think this is something passed on? Our Dr. said no but I...
Hi there Lisa.. Thank you for your thoughts and prayers. Yes, his Dr's have said it is passed on. They believe CVS is related to the migrain family... When I...
You are not alone. My daughter age 17 was recently told that she has CVS but had it at age 16. The doctor kept telling her it was a stomach virus but I got...
Amber, my daughter who is now 16 has had cvs since she was also nine years old she will be glad to talk to you, she also hasn't found any other teenagers with...
It's my daughter (23 yrs old). She plans to marrying next Aug and I often wondered if her health could take a pregnancy. In addition to CVS she also is being...
Hi Lisa, I read your email and I had to respond I'm 30 I have CVS and I have had 3 children. It's very hard but worth it. All my children were low birth...
Living with CVS, Doctors wouldn't listen and it nearly killed my baby. By Angela Crooks How would you feel if you suffered …..? Severe, constant, unrelenting...
Hello all! my name is Lisa, and my daughter was recently diagnosed with CVS.. she is only 8! this is something we have been dealing with since she was 4 and...
My doughter carolina is also 8 years and she also have CVS since she is 4 !! This year she was in the hospitale for 8 weeks, now it is better since april , she...
I read your history and had to cry !!! You have my full respect under these would stand around 3 children to get!!! It makes me sadly to think it my daughter...
Lisa - I have two children with CVS. My ds started just before 2 and my daughter when she was 3. Both of them started after a severe illness. With both of...
Terry, I read what you wrote Lisa, It seems as though we have alot in common. Im 28yrs old, I had CVS as a child and young woman, But back then they didnt have...
Keri - DS started on Depakote in Feb. The Neuro. started him off at a very low dose (125mg). He went from having one migraine every 3 months to having one or...
Hi Thank you for your email. CVS is a very hard condition to cope with but I have people around me who get me through it. Everyone with CVS gets through it...
Just a note to see how everyone is going. The list is pretty quiet and I would like to hear how things are going. My son's last full episode was in Nov/Dec...
hey everyone!! i'm super happy to be doing so GOOD for the last 6 months. I still take REMERON 15mg every other night and THORAZINE 50mg half the tablet every...
Hi, My name is Holly and I'm 20 years old. I was diagnosed with CVS this past June, and was also diagnosed with gastroparesis back in April. I always got sick...
Hi Holly... Though our reasons for being in this group are horrid (CVS isn't exactly a
great group to be in) welcome to the group :) My name is Tina and I am...
Tina, I'm sorry it took so long to figure out what was making you sick. I'm sorry you don't have any warning signs. Sometimes I wake up in middle of the night...
Holly - Welcome to the group. I am so glad you found us. Living with CVS can be a nightmare for many. It is immportant to find others who understand and can...
Terry, Thank you for responding! It's so good to hear from others who understand! I never really drink a lot of Gatorade. Maybe I will give that a try =)...
I'm Debi, 59 in Florida. I have not yet been diagnosed with CVS but through much research i'm pretty sure that will be my diagnosis. I have had such severe...
Hi Debi-- So sorry you've had to find us here : ( Yes- cycles triggered by stress and lack of sleep is common with CVS-- Someone on this list might be able to...
Thank you Mimi! I'll bet you even know how i've thought i'm crazy for the past coupleof years... Everyone else i've talked to about this thinks so anyway. ;~/...
Debi - I am so glad you found us. I hope we can be of help to you! We were able to get a correct diagnosis for my two children through a GI who treated CVS....
GOD BLESS YOU TERRY!! Thank you so much for your valuable information!!! debi ... -- <3<3<3<3<3<3<3<3<3<3<3<3<3<3 gramadeb2@... Princess Debi Savage ...
Hi, I am pretty sure my wife has CVS. She is a type 1 diabetic who has been diagnosed with gastroparisis. While we know that she does have gastroparsis, I...
I'm not sure that this was sent to the person you intended it to be sent to. I am Amy and I have recently joined the Yahoo group. My husband is the CVSer...
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