My son has CVS... finally diagnosed last year. He's had this problem since he was an infant. He is now 9yrs old. He has reoccurring symptoms every 3-6months....
why depakote? and what is cypro? hope he feels better.( i have a 5 year old son:) what else have you tried? 3 to 6 month in between really is good. curious...
Yes, my 9yr old son takes depakote. His neurologist stated that CVS is related the the Migrain family. He explained that basically he has a checmical...
Hello, I posted this message to find out if I was the only one to get pregnant and have CVS. Two years ago I got pregnant and during my pregnancy I had an...
Hi everyone, I have a 6 year old daughter who was initially diagnosed with CVS when she was 3. My biggest question is can anyone tell me how they feel or how...
I can only share my son's experience (or his behavior I guess)- because so much with CVS seems to vary so much from individual to individual-- but my son's...
Thanks for that Mimi. Yes it is difficult because everyone is different in their experiences. I guess like today, I didn't know whether to send my daughter...
Hello my name is sussanne and I is of austria, has already mail to the group skillfully however it did not function! 1 my asks would be my small daughter...
Hello dear people! My daughter is 8 years and is called Carolina, for autumn 2007 vomits her each month for approx. 1 week, it geginnt always around approx....
the feeling of after every episode is super normal. no headache and stomachache. well that is for me. i don't know with other people who have CVS coz i know it...
http://jcn.sagepub.com/cgi/content/abstract/21/3/182 This link was given to me by my daughter's Pedi. The information may help some others. I think it may help...
Sorry to dredge this from the old stuff, but I'm not into my email all that often anymore. My wife, Jamie (30) has CVS and we're working on getting pregnant....
I'm not sure which translation is correct... If you haven't already, you might want to check out http://www.cvsaonline.org, or the UK organization at ...
Hello. My name is Jeanine and I have an 8 yr. old son who we just found out has CVS. This is all new to us with in the past couple of weeks. My son is very...
Hello. My name is Jeanine and my 8 yr. old son has just recently found out he has CVS. Was wondering if anyone knows of any support groups for kids with CVS...
Hi Jeanine, Sorry about your son. My son is 9 and we just got home from a 6 day hospital
stay from a wicked(!) vomiting episode! If you see Dr. B. Li at...
My son was on amytriptyline for migraines and daily headaches. Since going on this med., he continued to have daily headaches but was having migraines only...
Susanne - I have two children with CVS. My son is moderate to severe and my daughter is mild. ... With both of my children, I am there for them. It is...
My son seems to have a "hangover" where he feels exhausted and dizzy. It usually takes him two days to recover from an episode. He doesn't seem to want to eat...
Hi Terry, Thank you soooo much! You have been a great help. I read your other post also to Susanne and your son presents so much like my daughter. It...
Thank you so for your answers, I am so sad that my english is so bad !! I will learn it better, so I can better understand what you mean, in my language (...
Thank you so much for this article , I would like let this article read my doctors in the hospital !! So they can better help my daughter carolina !! ...
Hy Terry! I give the doctors in the hospital the information about our group, and they also looking in the net, and now they can better help us. Now the time...
Susi - I am so glad your daughter is doing better. The CVS website is amazing and so helpful! If you have any more questions or would like to share what is...
I need some help and I'm a little upset at the moment so hang in there with me. After over a year of getting the "stomach bug" story I might now have a clue...
My name is susanne and I am from Austria! My daughter carolina ( 8 years ) has CVS since she is 4 years old, since 2 months we knows that is CVS ! And I am...
My daughter is now 23 and we found out about CVS 3 years ago. Until then, Drs. thought she was insane. One Dr. said, I don't know what to do, there...
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