Our Devin is having a hard time with vomiting and hospitalizations lately. He's been hospitalized six times in the past seven months with it, the latest one we...
Our 12 year old daughter was diagnosed Friday with CVS. We are seeing the group at Milwaukee (Dr. Rudolph). It's been 2.5 years since this started in earnest,...
My daughter is only 8, but the size of an average 4-year-old, so the 8mg of Zofran can only be 4-6 for us...We're trying Amytriptilline right now, after our...
My daughter is 17 now and we've been where you are. The good news is that she is so much better now. She hasn't been hospitalized or had a really bad episode...
Hi, I'm Kathleen, the 17 year old my mom was talking about. If your daughter would like, I would love to talk to her some time. I know it can be really hard...
Kathleen: She will LOVE to talk to you...I'm getting ready to take her into the er for fluids, but you can be sure she'll get back to you as soon as we're home...
i also have a 10 yr old girl that has had it since she was a baby ....she would be happy to talk to your daughter about it..... I really want to try the...
How is your daughter today? I hope she is feeling much better. Are they doing more than giving her IV fluids when she goes to the ER? Our doctor always...
... of ... age ... commiserate ... Our 9 year old has had CVS since age 4 and I am so blessed to have found this site and you who understand. We finally got...
Thanks to everyone who has resonded. We were in the ER for 8 hours yesterday...seemed like we'd shut the cycle down. Came home and had the pizza Mady had been...
My son (11) used amitriptyline as a migraine and headache preventative. I have not heard it being used for CVS. Since being on a low dose of amitriptyline...
I hope they didn't take him off the amitriptyline cold turkey, they are supposed to gradually reduce the dose. Our daughter had problems with it too and we...
I'm so sorry to hear that you had to make another trip back to the hospital. They should have admitted her the first time and made sure she was ok before...
Are we allowed to talk doses here re: the CoQ10 and L-Carnitine? Thanks, Mimi ... From: "mcdolemom728" <mcdolemom@...> I'm so sorry to hear that you...
Mady's in the hospital for the weekend--still can't stop puking. My husband and switched spots for tonight--I'm home with a martini (is it ok to say that?!). I...
Mary - ... They took him off of it cold turkey. I asked the Neuro. and he said it was fine to stop it immediately and go to the Depakote. I did this on ...
I'm glad they decided to keep her. I agree, the care isn't always the greatest on the week-end. Giving her something to knock her out is the best thing right...
Mimi - ... I have asked about this in the past and I believe the info. should be in the archives. Put each one in the search and it will come up with past...
Christine - ... I am so sorry. ... GOOD! You need a rest. ... out. My son has taken oral ativan and it did not work for us. I hope the IV will work. ... and...
There are side affects to going off without gradually reducing the dosage, especially if they've been on it for a while. I would suggest looking it up online...
just wanted to share my understanding is that the dose of amitriptyline for cvs is way lower than it would be prescribed for depression. Mimi ... From:...
Again the amitrptyline dose is supposedly very small for cvs--- i do know my neuro did not want to try depakote (or topamax) due to the side effects...so could...
hi! I'm belle. I'm 23 years old and i started having CVS when i turned 20. I'd like to know how you guys deal with it? because me, what i do is whenever it's...
Hi Belle, I'm Tina - almost 45 and my CVS started at 39. I wish I could give you some ideas, but for me I have no nausea at all - I
wake up suddenly and I...
thnx for the help. really?....yours is very different from mine. every time i have it i never get near with water. i even barely drink fluids. as of the...
My two children have CVS. The best thing for the kids have been on daily Prevacid. Since being on daily Prevacid, their episodes have become spaced out more....
