I AM A ADULT CVS SUFFERER AN HERE IS JUST PART OF MY STORY. PLEASE FEEL FREE TO CONTACT ME AS I WOULD LIKE TO KNOW ANOTHER ADULT WITH CVS [:D] ANGIE'S STORY ...
Hi everyone, I see that the forum hasn't been to active, I HOPE that's a good thing!! Anyway...I am pretty excited and wanted to share that the entire month...
GREAT NEWS Brooke !!! I will chime in with the HooRahhhh's - it's been since 7/29 for me - I am actually having my 2nd EVER Passport flush (it has to be...
Passport is what I have in my arm. Let me explain as best I can... I get such "heavy" drugs in my IV's when admitted that they blow veins almost as often as...
Hi everyone! I have a 3 year old daughter who for the past 5 months or so has had vomiting episodes out of the blue. She will first complain that her tummy...
My daughter had more severe symptoms. When she was diagnosed, we had a calender of the last 5 years and all her episodes and what was done (test and...
I agree, my sons symptoms are alot worse, I would love to have him only throw up twice would be great. On the other hands as a mother wondering why I can...
I agree, my daughters symptoms were much worse. She (now 7.5yrs, has had CVS plus migraines since she was 2yrs) probably vomits at least 4 times per hour, for...
Same over here--- The vomiting, at least during the worst parts, is every 10-15 minutes for several hours---- altogether he is sick for several days- except...
My son's episodes are kind of similar to your daughters, mostly in the fact that he only vomits a few times. He does, however, exhibit a pattern. He was 2...
Jen - I have two kiddos with CVS. My son (11) has pretty bad episodes while my daughter (8) has mild episodes. I told about the kiddos episodes in post #530...
Hi! My daughter was diagnosed with cvs by one of her doctors. Another doctors say she doesn't have it because she has liver disease (Autoimmune Hepatitis...
Jamie said she's nauseous every day. She's 29, and the episodes hae ben more mild in the last few years than they used to be. Not sure if it gets worse as an...
Well, in our case specifically, I passed the migraines down to our son, who
has a severe variant of CVS. Dr. Li calls it a Sato variant I believe,
whatever...
It sounds like she has cvs to me. the problem is there are very few doctors who know how to treat CVS. I have had it for 16 years now and im now 29. I can...
Ive never posted anything anywhere so bear with me please!! Quick history(as quick as I can make it) My daughter started vomiting episodes when she was about 3...
Hello, I'm brand new to this group... I have a little girl who will be 8 in 7 days - she is extremely medically fragile, which a huge medical history,...
Hello, I'm sorry to hear of your daughter's health problems. Poor girl sure does go
through a lot. I wanted to answer your question about possibly seeing Dr....
Kristine, Thank you for replying and for sharing with me! I've been praying for wisdom about this decision, and things seem to be pointing toward GOing. I'm...
I was so happy to have a quick reply, that I forgot to answer your questions! lol No, we don't have a protocal from Dr Li - the farthest we've gottne so far is...
We're desperate! Emmie has been vomiting every 1-2 DAYS since we've been home from the hospital! The Topomax preventative is causing terrible neuro side...
Oh I'm so sorry! Can you get her pediatrician to prescribe Zofran or
Ondansetron for her right away? Can you take her in to be seen, and then ask
for something...
Hi Kim, Please go back thru all the previous e-mails and data base including several years back. My daughter's life was turned around when she started using...
To respond to the Zofran idea... this IS what we use when she is hospitalized. However, the docs told me its only IV or IM ... how do you guys give it at...
Your physician should prescribe it and it should be used before the person is sick. Meaning when there is a sign of something not right happening (some...
Zofran, or the generic Ondansetron, is given at home in an orally
disintegrating tablet. It melts on their tongue. We give 8mg every 4-6 hours Kristine *Ü* ...
took all day for neuro to return my 5 phone calls.. they decided to stop the Topomax and start phenobarb for prevention, and they've also stopped the compazine...
took all day for neuro to return my 5 phone calls.. they decided to stop the Topomax and start phenobarb for prevention, and they've also stopped the compazine...
