Hello all, my name is Brooke, I am a 29 year old married Mommy of a 9 year old boy. I live in SW Florida. I have just recently been diagnosed with CVS. I...
My son is also fine between episodes... I thought that was one of the criteria for CVS??? Good luck to you, M ... From: "Vicki" <mothrotwins@...> My...
Hi Brooke ! I don’t know how active this list is because this is the first message I have received, but I will answer your question for you… I am 44 and I...
I am generally well in between episodes also. I don't know that I'm going to have an episode until I wake up the morning of and feel HORRIBLE, then around...
Boy that is GREAT that you come out of it so fast. As hard as we have tried – there has been NOTHING that will bring me out in less than 72 hours L That is...
Yes, being well in between episodes is a general critera for CVS. I was wodering how patients are in between bouts of throwing up. I tend to get very sweaty...
... episodes. ... I'm in the same situation you are, except its my boyfriend. He's been in here about a week but from what I know sleep is the only thing to ...
My daughter whom is 15 now has had CVS for four and half years now and she has alot of very bad episodes also. Her doctors also says stress, excitement, being...
... Hi, my name is Brooke. I have CVS. I am sorry that your boyfriend is sick. I don't know ezactly what you are going threw but I do know it is VERY hard...
I am new to this group, and I truly hope no one minds that I am here. My best friend's 12-year-old son was diagnosed with CVS when he was 6 years old. I've...
Hi Lynn - I personally have no problems with you being here - and if there is anything I can do to help you get the word out about this horrendous disease you...
I hope Kristin continues to be well ! Its great to hear of someone whose episodes have ended :) Unfortunately for me - when I went to "The CVS Dr." (Dr. Edward...
He's been here a week and they've given him every med possible... so I guess now we play the waitng game. I wish I knew what to say to him to uplift his...
okay well I don't know first hand of cvs but I have to see it since my boyfriend has it... so you can ask me anything (or him) and we'll do our best to answer ...
Oh Hun no - everyone has different triggers! Don't rule out anything - but DO try to identify those things that are apparent each time your husband cycles. The...
... here. My best friend's 12-year-old son was diagnosed with CVS when he was 6 years old. I've been watching her stuggle with this since then--stuggle with...
Hi, My daughter is 3.5 and has struggled with vomiting and feeding problems since birth. She has had periods of severe vomiting (including sometimes hospital...
Hi Darshani - Have you visited the CVSAonline.org website? There is a wealth of information there - some even that you can present to your Dr. They will also...
Tina thanks so much for your reply. I just posted at the CVA forum and am looking through the web pages on that site right now. Nitara does crave a lot of...
... will ... daughter ... everything ... diagnosis ... include the ... for a hot ... doesn't really ... light, ... have at ... daughter's ... encouragement and...
My daughter had her episode this week also , which had happened since she was 6 mo. old and every 35 days or so...she get early am vomiting , helped now by...
Congrats on the FMLA Hun !! And NO PUKING ALLOWED ! LOL :) One month - is great ! I have done my first month this year too and I am ecstatic !! Huggz from a...
Vicki, Yes, much success. My son takes liquid L-carnitine from Twin Labs 2x 1 tablespoon each day. He takes Q10 2x 100mg gel cap(orange pill) from Healthy...
Brooke - I have two children with CVS. Their episodes are as different as day and night. My 6yo usually starts between 3-4am or 7-8am. She will vomit mildly ...
I don't mind you being here either. I had never heard of CVS until 2 years ago when I tried to get my son diagnosed and my daughter was having mild symptoms...
Tina - We have no clue at this time what triggers my daughters CVS. She regularly cycles every 6-8 weeks but their are no known triggers for her. Since she...
Thanks for sharing. This is such a difficult thing to deal with. I am thankful you have Dr.'s willing to listen and follow through! When my daughter was...
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