Mary - I found a CO-Q at Sam's Club today. I cannot seem to find out if it is pharmaceutical grade or not. I did notice it has Goji Extract in it. This is...
I'm not sure if I'm getting in the middle of something I missed on the emial stuff but if it's on what I got about coQ10 and it's being reported because of...
I am sorry sweeite. I got a spam on this web site for a free sams club card and I feel for those of us that suffer and have kids that suffer we should have a...
While we have recently received some very inappropriate messages on this forum, I believe this one is legit. We are all a little sensitive about the spam we...
Mary - Thank you so much for your response! Yes, this is a legit question. I appreciate your helpfulness. Thank you also for letting me know to check with...
I just started taking both of these supplements for 3 months and have been almost symptom free. It seems to work for me along with my other meds. I just kept ...
I would humbly suggest to the moderators that anyone who cannot keep their comments on a professional level be removed from the list.(Maybe after a warning or...
We had another hospital stay this week and it is actually his first stay since my son was actually diagnosed with CVS, so this was our fist time for Ativan. I...
Well, my wife Jamie is living proof that it's possible to live with CVS. She holds a couple part time jobs, and with my full-time job at the hospital, we can...
My daughter had a very bad allergic reaction to Ativan, so we cannot use it anymore. The last time she was in the hospital she was given something by IV that...
I believe the person that made the inappropriate comments has voluntarily removed herself from this group. She truly believed the message she was responding...
My son also had a very similar, very severe reaction to Ativan given IV when he was 13 yrs old. He was not given it again until he was 17 yrs old and in the...
So glad to hear your wife is coping with CVS well. It certainly gives hope for others. I often wonder if my daughter will be able to live a "normal" life....
I took my daughter who lived in LA to the Mayo Clinic in Scottsdale about 2-3 years ago and she is now normal. Please read thru the old communications for our...
Hello everyone. My son, Sam, is being admitted this evening for a clean out. He has had CVS for 4 years and one thing that triggers his episodes is when his...
Hi, everyone. How can you be for certain that what your child has is cyclic vomiting? Here is our story: My son is 11. Last year, he went through an entire of...
I am not a doctor but from what I understand there is no way to know for sure. I have been told by several drs that there is no test. They have to rule out...
Hi Ann-- I wish I had suggestions... I just wanted to let you know that my son also struggles with severe constipation... I feel it must somehow be related to...
Terry i was just going back in the posts to look for something ...I dont know how the heck I missed this... I have a client...who ..once hearing about my...
Just wanted to let you know one of the best known CVS drs is in Columbia MO (noticed your son was hospitalized in st louis) -- if the vomiting starts up again...
Kristy - ... This sounds similar to my son. He has acid reflux and CVS. My son had an upper GI with barium swallow done and you could see the barium going...
Jamie's older, 29, but been on Ativan for a couple years. It used to be really bad, but she's learned to cope with it a bit more each time she's had to use it....
I myself have times where I only go every 4 or 5 days. Depends on my diet, i have a very healthy metabolism and eat 3-4 large meals a day (and snack in ...
Meds: Prilosec, porpanol, amitriptlayne, paxil daily and Zofran as needed, ativan when it gets really bad. Kids: <shrug> No one knows. 50% chance the kid has...
With as much time as we have spent in and out of the hospital, ER trips (sometimes weekly for months at a time) I wonder why my daughter's Dr. has not...
I'm not sure -- the generic works for Jamie just as well, if it's the same formula that's been sold for years in India. The insurance was a fight and we needed...
I always assumed generic worked the same as name brand- but just yesterday i was discussing this subject with a medical professional about a med for myself-...
Your mileage may vary -- personally I've had good luck with generic meds. Medically, I don't know if there is a major difference, my medical background is next...
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