Amber - I have not read posts on this group for awhile. Can you explain about the back pain thing or tell me what post it is? Also, what are the two meds....
Elizabeth - Both my kiddos use the sublingual Zofran. It is WONDERFUL! It has helped with the vomitting and nausea with both kiddos. When my 6yo dd starts...
Terry, I was the one that suggested seeing Dr. Barrios. I am so glad that he was able to help you!! I just referred another friend from church to him. He is...
April - Does your son have migraines with the vomiting episodes? I was on propanolol for migraines and my son has migraines, that is why I ask. My 6yo dd is...
Sorry to hear about your awful ER experience.... curious about your son's symptoms getting worse!?? Our GI keeps insisiting most kids outgrow this-- and that...
Sandra, My son started on Reglan before he was even diagnosed with CVS, he was on it for over a year before we were even diagnosed and when we finally got into...
Ok this may seems strange, but we were just diagnosed in the first part of August. I keep seeing were so many of the children have regular cycles right on...
Mimi - Our GI has told us that each person with CVS is different. Each case has to be handle specific to that person. Our daughter started CVS after having a...
Beverly - We tried Cyproheptadine and it did not work for us. I am glad it works for Zacrie! What does the Reglan do? I have not heard of this. Terry ... we ...
Beverly - When my ds episodes did not become "regular" (every 6-8 weeks) until this year. We also have been watching over the past few years to see if...
We're in the Raleigh area and my son goes to UNC PedGI and sees Dr. Steven Lichtman. He was the first doctor we've found that even knew what CVS was. We've...
My understanding of the Reglan is that it makes the stomach empty faster so that the food is not just sitting there waiting to come back up, if it's not there...
Beverly - My daughter rarely ever throws up food. It is usually bile and water so I don't think the Reglan would work. Thanks for letting me know. Terry ... ...
... that doesn't even work if I don't catch it right when the first symptoms show. What about using Ativan or Nasal Imitrex to knock him out? Imitrex has...
I am new to this group and I really just need to know that I am not alone. My daughter was diagnosed with this condition in April of this year. She had a 4...
you talk with friends and family about it, look for support groups in your area, and take time for YOURSELF, but on the down side you need to save all the sick...
Kristy, I just wanted to let you know of our situation and hopefully give you a glimmer of hope. My daughter, who will turn 7 next sat., did this exact thing...
Hello Kristy. My son was diagnosed with CVS at age 4 and he is now 7 years old. Prior to that every doctor we saw (for about a year)told us he was sick because...
Hi all, I want to thank everyone who responded and let me know I was not alone with my 6yr old daughter. We made it through the weekend and she is finally...
I am so glad you found something that works. My son takes 4mg Zofran sublingual(melt away) and then I give him tylenol and although is tummy might hurt he has...
Hi, I'm new to this Yahoo group, but not to CVS. I have a 16 year old daughter that has had it most of her life. I'm wondering if there is anyone in this...
Hi, My daughter had CVS, not at your daughters age, but from about 22-28. After a visit to the Mayo clinic in Scottsdale and a change in her diet, meds,...
Sorry you've had to find us here! I used to live in Kansas City (and before that Columbia)-- unfortunately, my son wasn't diagnosed properly until we moved...
HI NEW TO GROUP AND JUST DIAGNOSED AFTER HAVING CONDITION SINCE EARLY 80'S. HAVE BEEN PUT ON TOPOMAX AND HAVE HAD SOME SUCCESS WONDERING IF ANY OTHERS OUT...
I don't feel like the cyproheptadine (periactin) has helped my son...but our specialist wants us to stay on it for some reason (on it for about 2 years now)......
Hi, I am Rebecca and age will be 25. I have cvs all my life.My cvs stop at 12 year and start up again at 17.I now been out of the hospital for 18 month.The...
Hi Rebecca, That's great news! I am so glad you found a doctor who knows how to help you. Check out cvsaonline.org if you have not done so already and get on...
Ann - What did you do with your daughters diet? Terry ... 22-28. After a visit to the Mayo clinic in Scottsdale and a change in her diet, meds, stressors and...
She was advised by the Dr to eat a high protein, high carb, low fat diet. She avoided fast food as well. She also has to eat frequent small meals and not...
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