Mine hit out of nowhere. I will all of a sudden get sick to my stomach. I take reglan first then the compazine. Maybe give her tylenol before she goes to bed....
Alyson's episodes usually are not predictable (as far as I can chart, so far) but I can usually tell by her behavior that it is coming. Alyson is 6 and she...
I have had this condition all of my life. One thing I have learned is there is no consistency. I used to have one episode per year, and they lasted exactly 7...
I can relate to everything you said in your email. I had been accused of being a drug addict to, yet all the drug screens were negative. Have you gone to a...
Some good news! My 15-year-old daughter has been episode-free for 8 weeks now, which we haven't had happen for quite a while! We went to the specialist at...
I have been haveing some issues with Chronic Nausea everyday a lot lately, feeling Bloated everyday alot lately, Bladder leakages that soak my underware...
My 6 year old daughter was put on Reglan about 2 weeks ago. She is already on Nexium 20 mg 2x per day. This week she had a reaction to the Reglan, and they...
i have basically all the symptoms u have: chronic nausea/bloated feeling/bladder probs/stomach rumbles,etc. i used to think that i might have cvs, but my...
I believe my daughter has had CVS since 18 months old. I thought at 6 1/2 to 7 years old she'd grown out of it. No episodes until this June. She had her...
Hi April, I'm new to the message boards, but my daughter has had CVS since 18 months old. She's not almost 8 years. Zofran is a drug that has helped her stay...
Hi April, I'm new to the message boards, but my daughter has had CVS since 18 months old. She's not almost 8 years. Zofran is a drug that has helped her stay...
Good morning all. I'm going to unsub from this group for now. My son was on a 7 day on, 7 day off, then 21 day vomiting spree when I joined the group. Drs ...
Amber - I have not read posts on this group for awhile. Can you explain about the back pain thing or tell me what post it is? Also, what are the two meds....
Elizabeth - Both my kiddos use the sublingual Zofran. It is WONDERFUL! It has helped with the vomitting and nausea with both kiddos. When my 6yo dd starts...
Terry, I was the one that suggested seeing Dr. Barrios. I am so glad that he was able to help you!! I just referred another friend from church to him. He is...
April - Does your son have migraines with the vomiting episodes? I was on propanolol for migraines and my son has migraines, that is why I ask. My 6yo dd is...
Sorry to hear about your awful ER experience.... curious about your son's symptoms getting worse!?? Our GI keeps insisiting most kids outgrow this-- and that...
Sandra, My son started on Reglan before he was even diagnosed with CVS, he was on it for over a year before we were even diagnosed and when we finally got into...
Ok this may seems strange, but we were just diagnosed in the first part of August. I keep seeing were so many of the children have regular cycles right on...
Mimi - Our GI has told us that each person with CVS is different. Each case has to be handle specific to that person. Our daughter started CVS after having a...
Beverly - We tried Cyproheptadine and it did not work for us. I am glad it works for Zacrie! What does the Reglan do? I have not heard of this. Terry ... we ...
Beverly - When my ds episodes did not become "regular" (every 6-8 weeks) until this year. We also have been watching over the past few years to see if...
We're in the Raleigh area and my son goes to UNC PedGI and sees Dr. Steven Lichtman. He was the first doctor we've found that even knew what CVS was. We've...
My understanding of the Reglan is that it makes the stomach empty faster so that the food is not just sitting there waiting to come back up, if it's not there...
Beverly - My daughter rarely ever throws up food. It is usually bile and water so I don't think the Reglan would work. Thanks for letting me know. Terry ... ...
... that doesn't even work if I don't catch it right when the first symptoms show. What about using Ativan or Nasal Imitrex to knock him out? Imitrex has...
I am new to this group and I really just need to know that I am not alone. My daughter was diagnosed with this condition in April of this year. She had a 4...
you talk with friends and family about it, look for support groups in your area, and take time for YOURSELF, but on the down side you need to save all the sick...
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