My son seems to have a "hangover" where he feels exhausted and dizzy. It usually takes him two days to recover from an episode. He doesn't seem to want to eat...
Hi Terry, Thank you soooo much! You have been a great help. I read your other post also to Susanne and your son presents so much like my daughter. It...
Thank you so for your answers, I am so sad that my english is so bad !! I will learn it better, so I can better understand what you mean, in my language (...
Thank you so much for this article , I would like let this article read my doctors in the hospital !! So they can better help my daughter carolina !! ...
Hy Terry! I give the doctors in the hospital the information about our group, and they also looking in the net, and now they can better help us. Now the time...
Susi - I am so glad your daughter is doing better. The CVS website is amazing and so helpful! If you have any more questions or would like to share what is...
I need some help and I'm a little upset at the moment so hang in there with me. After over a year of getting the "stomach bug" story I might now have a clue...
My name is susanne and I am from Austria! My daughter carolina ( 8 years ) has CVS since she is 4 years old, since 2 months we knows that is CVS ! And I am...
My daughter is now 23 and we found out about CVS 3 years ago. Until then, Drs. thought she was insane. One Dr. said, I don't know what to do, there...
Hi, My son was 3.5 as well when he started his episodes. My ped at the time told me that it was just the stomach flu and I thought, no, this is something else....
Hi, My son was 3.5 as well when he started his episodes. My ped at the time told me that it was just the stomach flu and I thought, no, this is something else....
Susanne - Be careful with the Amitriptyline (A) it can cause GI issues to become worse. My son had acid reflux as well as CVS. We increased the A and had to...
Kelly - I am so glad you found us but I am so sorry about the circumstances. All of us have been where you are at one point or another. It took years, many...
Hello Kristine, Sorry about how long it's taken to get back to you...I just wanted to say thank you for your advice and my husband and I are looking into ...
Thank you so much , but carolina helps the Amitriptyline so good, and she sleeps better and she is more balanced during the day !! But the only side effect is...
Hi Terry, Sorry it's taken so long to write - very busy. So far all is going well, thanks for asking. Have been able to get some helpful information. It's...
Susanne - I am so thankful Amitriptyline is working for your daughter! GI = Gastro Intestinal A Dr. who specializes in the stomach and intestines. Terry...
Are there any teenagers in this group with CVS? I've had it since I was 9 years old, and I'm now 16. I haven't met anyone my age with CVS, so I feel kinda...
I would have the following question: are there CVS patients; those again became completely healthy???? Please report it to me these stories !! Thanks and lg...
Hello there, Im replying to the message: Has anyone had CVS, and completely recover from it... Well Im a CVS recoverer.. I wasnt actually tittled or diagnosed...
Wow! Good news for you. I'll send good thoughts out into the universe for your son. Did the Drs think this is something passed on? Our Dr. said no but I...
Hi there Lisa.. Thank you for your thoughts and prayers. Yes, his Dr's have said it is passed on. They believe CVS is related to the migrain family... When I...
You are not alone. My daughter age 17 was recently told that she has CVS but had it at age 16. The doctor kept telling her it was a stomach virus but I got...
Amber, my daughter who is now 16 has had cvs since she was also nine years old she will be glad to talk to you, she also hasn't found any other teenagers with...
It's my daughter (23 yrs old). She plans to marrying next Aug and I often wondered if her health could take a pregnancy. In addition to CVS she also is being...
Hi Lisa, I read your email and I had to respond I'm 30 I have CVS and I have had 3 children. It's very hard but worth it. All my children were low birth...
Living with CVS, Doctors wouldn't listen and it nearly killed my baby. By Angela Crooks How would you feel if you suffered …..? Severe, constant, unrelenting...
Hello all! my name is Lisa, and my daughter was recently diagnosed with CVS.. she is only 8! this is something we have been dealing with since she was 4 and...
