My wife has CVS and her neurolgist put her on migrain meds, so far she hasn't had an episode in 3 months and has even felt afew coming and was able to counter...
I've had CVS for over 14 years but just recently this year have started having severe chest pain. I've had my heart checked out and been to my doctors but no...
HI Nicole, my heart goes out to you. Its no easy thing to deal with watching your child turn into that state, my son Zachary(12) has been dealing most of his...
HI Starr. I'm just throwing this out to you from my friend's experience. My friend is a very healthy individual without CVS. She exercises and eats well. Out...
Hi Linda, That is interesting. At one point I was diagnosed with fibromyalgia too and was put on lyrica but nothing seems to help. One doctor in Colorado...
My daughter has CVS and it is brought on when she comes down with a cold or any other illness. This is her only trigger. We were finally diagnosed this...
Hi Everyone, I have just joined this group, as did not know one existed til I goggled this support group (apologies to Yahoo!). My son was diagnosed with CVS...
Hi Everyone, I am new to this discussion board. I have a six yr old little boy diagnosed with CVS since sep 08, and we had 8 months free from episodes and then...
Well, I haven't been diagnosed yet at least with CVS but I have the same symptoms. My episodes started last September and I've had 5 between then and this...
Sorry to hear about your son! We do manage our son's episodes at home. He usually cycles every 8 weeks (although he had an unusual cycle 3 weeks ago at 5...
Hi Mprizey, Thank you so much for your reply, Going out to the chemist to get the phenergan suppositories, if I could begin to treat my son's episodes at home...
We have dealt with CVS since my daughter was 6 mos. old , now she is 12......so we have dealt with the cycles almost monthly since then ...they used to be...
One more thing , in re reading the original post , I see you were asking what might cause CVS....for us, it is not diet or anxiety or any other outside...
I also have a 6 year old who has been suffering from CVS since she was 3 years old. When she first starting having her episodes it was every 4 weeks like...
My friend's 15 Year-old daughter is going on day four of continuous vomiting and abdominal pain. This is the third time she has had this. Unfortunately, her...
Hi there, Have tried to get the phenergan suppositiries, and unfortunately despite every effort on the part of my chemist, they can not get order them for me....
Yes! they are prescription only... unfortunately they didn't seem to work for us : ( I don't know if the dose was just too little? but even with the phenergan...
I hope you won't mind my telling again because it might help someone find what's causing their episodes. For more than 40 years, I had bouts of vomiting and...
Hi, Well we are nearly at the end of the dreaded week, where my son should have had an episode and so far he has escaped, thank God and fingers crossed. Has...
Hi, My name is Holly; I'm 21 years old. 2 years ago I was diagnosed with gastroparesis, and this past January I was diagnosed with Ehlers-Danlos Sydrome (type...
Nice to meet you Holly. There are a lot more parents of Children with CVS
than there are true Adult CVS patients in this group. I am Tina, I am an Adult...
Welcome newcomers to this site. Periodically I post my story. I was diagnosed with cyclic vomiting syndrome in 2004, after all the scans and tests, the various...
Holly - My son has CVS, HEDS and Dysautonomia. He has had issues with the vomiting starting before his 2nd birthday. I hope you find the help you need. Go...
hi i just wanted to say wow ur story sounds like mine im 20yrs old diagnosed abt 3 yrs ago out of nowhere... i didnt what to do i felt like dyin my mom was so...
I yearn for the day when we will know what sets off these horrid bouts of vomiting. I'm sure the cause is different with each individual. Thanks to everyone...
Hi All CVS Sufferers, My father in law has suffered from CVS for 15 years. He, like all of you, has tried everything with mixed results. One drug we have used...
You have to focus on that she is totally WELL between episodes...the CVS itself , no doubt , SUCKS!!! as my 12 yr old who has it can attest to but she lives...
Thanks for your email, Vicki. I also was completely well between bouts. Absolutely nothing even mildly suspicious. Many years of that passed before I was...
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