Hi,
Try Dr. Richard Boles at Children's Hospital Los
Angeles. He's a geneticist who specializes in CVS.
http://tinyurl.com/ds5n4

I use coq10 from healthy origins for my son - call:-
888-228-6650, and buy L-carnitine from Twin Labs over
the counter (liquid). You can ask for a discount since
it is for CVS. These supplements, along with
cyproheptadine and help from my son's ped and Dr.
Boles, has helped my son manage the symptoms of CVS.
It took about 2 months to work (build up) for my son
to see a noticable improvement and he has been episode
free for 9 weeks now. Please talk with your doctor
first to see how much you would need to take, etc.
Many people have reported that this helps their
symptoms of CVS. Not all have been helped but many
have seen an improvement at least.

I wish you well. Do not give up hope.
Susan


--- khavel13 <khavel13@...> wrote:

> It's been a long time since I've been to this group.
> My boyfriend, 29,
> suffers from this syndrome. He was diagnosed in the
> summer, and
> although he is on numerous medications, they don't
> seem to be helping.
> He still has many attacks, especially in the past
> month or so. In
> addition to his frequent attacks, he is so
> frustrated that he can not
> live his life. He has a hard time keeping a job
> because he will be
> sick a few days out of the week-which adds to the
> stress of paying
> bills! He's getting very depressed, along with
> anxiety, because he
> doesn't see a light at the end of the tunnel. I
> don't know what else
> to do...he already goes to great doc's at UCLA and
> sees a psych. If
> you have any advice to give, about medications that
> have worked for
> you, herbal remedies, anything, I am desperate!
> Best wishes to you and yours,
> Kelly
> email: khavel13@yahoo
>
>
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com