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zofran ?   Message List  
Reply | Forward Message #705 of 1876 |
RE: [Cyclic Vomiting Syndrome] zofran ?

I get odansetorn from overseas for Jamie. Works like a champ. We get it
much cheaper than the name brand (zofran) since our insurance won't
cover it at all (they'll only give us 15 pills/month, she takes up to 6
a day).

I can't remember the link or the name of the pharmacy to save my life at
the moment, but let me knoe if you need it. Just make it a subject I'll
recognize, I get over 1000 messages a day. Drop the "-list" off my email
address to email me directly if you'd like.

-----Original Message-----
From: cyclicvomitingsyndrome@yahoogroups.com
[mailto:cyclicvomitingsyndrome@yahoogroups.com] On Behalf Of Beth Trask
Sent: Saturday, August 27, 2005 9:31 AM
To: cyclicvomitingsyndrome@yahoogroups.com
Subject: Re: [Cyclic Vomiting Syndrome] zofran ?


You would have to ask your specific pharmacy, my guy here said it is
$10.00 a pill, but our
insurance covers it so it doesn't cost us anything. I am sure that each
region is different.


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[Non-text portions of this message have been removed]
Mon Sep 5, 2005 1:50 am

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chrishendrickx
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Forward 		Message #705 of 1876 |
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My 4-year-old son is scheduled to cycle any day-- He woke up last night screaming in pain-- saying his stomach hurt-- this has never been a symptom before- but... 		mpizey@...
pizenstein
Offline Send Email 		Aug 25, 2005
1:37 pm

In your situation I would give the Zofran today with all 3 doses as a "propholactic". I would first try to "abort" the event and maybe see if the stomach ache...
dale van
dale2ann
Offline Send Email 		Aug 25, 2005
2:02 pm

Mimi, My daughter began to experience intense abdominal pain, and it was after her four years of remission. IT was very strange but did become another regular...
E. Anne Grady
igivglory
Offline Send Email 		Aug 25, 2005
2:42 pm

Mimi, I crush his zofran tablet with a spoon and put it in some pudding. (very small amount of pudding washed down with water) My son will only take the zofran...
Susan Rosmann
srosmann
Offline Send Email 		Aug 25, 2005
3:05 pm

My nephew is diagnosed with autism and my sis crushes his meds and puts it in...I think applesauce.. I would have thought you could taste it, but apparently...
E. Anne Grady
igivglory
Offline Send Email 		Aug 25, 2005
3:43 pm

Yes. At first no, but he tasted it in his pudding. I tell him it is either take the pudding or go to the hospital. Tough love, but he can be stubborn. I just...
Susan Rosmann
srosmann
Offline Send Email 		Aug 25, 2005
3:57 pm

My daughter isn't on any meds, but I just wanted to mention here, that she (5yrs) also gets extremely pale just before an episode. And she is pretty pale to...
Jennifer Prior
jesthaimthor
Offline Send Email 		Aug 26, 2005
2:41 am

When my daughter was younger...I thought she just could not tolerate the flu, and did everything I oculd to prevent her from being exposed to it. We still...
E. Anne Grady
igivglory
Offline Send Email 		Aug 25, 2005
4:07 pm

E. Anne, Wow. I am so glad you were treated so well at Riley Children's Hospital. After all that, it must have been so nice to get some real help. I was...
Susan Rosmann
srosmann
Offline Send Email 		Aug 25, 2005
8:56 pm

Is anyone finding that the supplements coQ10 and liquid L-carnitine are working ? We tried the carnitore pills for awhile with no results...the coQ10 was...
Vicki Tripido
mothROtwins
Offline Send Email 		Aug 26, 2005
2:36 pm

Vicki, Try coQ10 gels from Healthy Origins. Tell them you use it for your child's CVS and they might be still giving a discount? You'll have to ask. I also use...
Susan Rosmann
srosmann
Offline Send Email 		Aug 26, 2005
3:08 pm

Thanks all for your input! We are actually using liquid zofran-- (which I would think would be easier to get down-- although maybe crushing a pill would be...
mpizey@...
pizenstein
Offline Send Email 		Aug 25, 2005
9:24 pm

Mimi, I'll tell you, I have sneaked more stuff into foods than I ever thought possibly could be done. I put the coQ10 gel and squeeze it onto his morning...
Susan Rosmann
srosmann
Offline Send Email 		Aug 25, 2005
10:28 pm

We use the dissolvable Zofran , disolves under the tongue quickly , this may be more acceptable to your child, I can even slip it in her mouth when she is...
Vicki Tripido
mothROtwins
Offline Send Email 		Aug 26, 2005
2:38 pm

Boy, this info is really getting good-- much more specific than usual. I had no idea zofran could be gotten in liquid form. My son takes it in dissolvable...
Linda Piersma
lindapiersma65
Offline Send Email 		Aug 26, 2005
2:07 am

Thanks for the very interesting information!!! I mentioned dissolvable tablets to our specialist because I htought I had heard of it-- but she said that it...
mpizey@...
pizenstein
Offline Send Email 		Aug 26, 2005
3:42 pm

We also use dissolvable tablets, they are about $10.00 per pill so some pharmacies might not carry them due to the high cost. I know that we can only get 15...
Beth Trask
dtnbt
Offline Send Email 		Aug 26, 2005
5:57 pm

From what I've been told, dissoluble zofran (ODT) is about $30 a pill. Linder [Non-text portions of this message have been removed]...
Linda Piersma
lindapiersma65
Offline Send Email 		Aug 27, 2005
5:14 am

You would have to ask your specific pharmacy, my guy here said it is $10.00 a pill, but our insurance covers it so it doesn't cost us anything. I am sure that...
Beth Trask
dtnbt
Offline Send Email 		Aug 27, 2005
1:31 pm

I get odansetorn from overseas for Jamie. Works like a champ. We get it much cheaper than the name brand (zofran) since our insurance won't cover it at all...
Chris Hendrickx
chrishendrickx
Offline Send Email 		Sep 5, 2005
1:50 am

Hi Chris, I would love you to research your resource overseas for Odansetorn. My daughter is living in Mexico and her cost per pill is $15/pill. She doesn't...
dale van
dale2ann
Offline Send Email 		Sep 5, 2005
11:16 pm

<http://overseasrxdrugs.com/> http://overseasrxdrugs.com/ is the site. Current listings: <http://overseasrxdrugs.com/html/cart/productInfo.asp?ProdId=494> ...
Chris Hendrickx
chrishendrickx
Offline Send Email 		Sep 17, 2005
3:26 am

I know my daughters standard Zofran is 35.00 per pill. When our insurance told us we only get ten per month, I was FURIOUS. I let them know that after the ten...
E. Anne Grady
igivglory
Offline Send Email 		Aug 27, 2005
1:49 pm

I know ours will only give us 15 at a time, and we did the same thing with refilling, our doc said that once our refils were used to come in and he would write...
Beth Trask
dtnbt
Offline Send Email 		Aug 27, 2005
4:23 pm

I don't know if this is possible, but since you travel, maybe you could compile a list of specialists nationwide? Or is there one in existance? I am sure...
E. Anne Grady
igivglory
Offline Send Email 		Aug 27, 2005
5:00 pm

I know that there is a great children's hospital here in Memphis, St. Jude's. I will have to see if they have someone there. Crossing my fingers that after 4...
Beth Trask
dtnbt
Offline Send Email 		Aug 27, 2005
9:54 pm

I give my daughter hers at the first sign of stomach ache or nausea, ANYTHING to prevent an episode, but she's 10 and I know it is harder to reason with a 4yo....
Beth Trask
dtnbt
Offline Send Email 		Aug 25, 2005
4:19 pm
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