Search the web
Sign In
New User? Sign Up
cyclicvomitingsyndrome · Cyclic Vomiting Syndrome - A place to talk about Cyclic Vomiting Syndrome
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Show off your group to the world. Share a photo of your group with us.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Re: [Cyclic Vomiting Syndrome] Re: Meds--what works?   Message List  
Reply | Forward Message #590 of 1869 |
Re: [Cyclic Vomiting Syndrome] Re: Meds--what works?

I smoke marijauana to help with my symptoms. I would
like to try marinol but I don't know of a doctor who
will prescribe it for me, my doctor laughed at me last
week when I asked if he would at least let me try it.
I live in a small town in Alabama & no doctor I have
seen so far has ever heard of cvs. How did you get a
doctor to prescribe marinol?

Renee

--- Nicholas Demers <methuen8@...> wrote:

> I take .05 mg of clonipin and there is also clonipin
> wafers which go under the tounge and disolve so you
> dont need water i find that those work great. Use
> them appropratily and they are helpful. And for you
> people who are brave evenough to try something new I
> have been on Marinol (medical marijauana) for about
> 4 months and not had any symptoms. So those are what
> work for me I wish you all the best of luck each day
> is a challenge.
> Nicholas Demers
> Methuen8@... or Methuen8@...
>
>
> dale van <dale2ann@...> wrote:
> Success for my daughter after a visit to the Mayo
> clinic included low fat diet (no fast food that have
> been deep fried or anything else deep fried), high
> carb/protein, regular meals and no fasting,np
> alcohol, decrease stress, lots of sleep, no flying
> in airplanes for awhile (increased hyperbaric
> pressure was the reason) zofran and an
> anti-depressant that is not a GI aggrevator (many
> are) and her life is so much better. No episodes
> for over a yr. She will be flying for the first time
> next week and the plan is to take a Zofran
> propholactically prior to the flight and 1 or 2
> doses also after she arrives whether she needs them
> or not. Shocking that such simple things could make
> so much difference. She had been on prilosec for
> GERD for 4 years and always felt ill and vomited all
> the time with freguent ER visits and
> hospitalizations. I'm sure this won't work for all,
> but it was huge for her. She still takes Zofran at
> the sign of feeling not well, but it is now a rare
> need.
> Good luck,
> Ann
> brittdavis88 <brittdavis88@...> wrote:
> My CVS was pretty chronic for a while- about 8
> months. I hace sevre
> reflux so for that I take 30 mg. Prevacid ODT, 60
> Mg. Famotidine, 25
> MG Elavil (Im going to go up on that soon) and
> Nasarel. I am on TPN
> right now because of malnutrition but soon (maybe a
> few weeks?) that
> will go away *hopefully*.
> Prevacid ODT is really expensive but my Doctor
> managed to get it my
> insurance to cover it because I have dysphagia
> (trouble swallowing).
> I still cycle 3-4 times per week, but thats better
> than 7 times,
> right?
> Britt
> --- In cyclicvomitingsyndrome@yahoogroups.com,
> "erinkonrad"
> <actress133@a...> wrote:
> > Hey everyone...I'm pretty new to this group. I
> have been throwing up
> > unvoluntarily since Oct. 15, 2003. One doctor
> said that I meet the
> > criteria for CVS, except that it's more chronic
> right now.
> >
> > I was in the emergency room twice in the last year
> from allergic
> > reactions to Compazine and Reglan. I had a
> dystonic reaction to
> both,
> > which means I can't take anything in that drug
> family.
> >
> > I'm on Zofran right now, but does anyone know of
> other medications
> > that have helped them manage their symptoms? I'm
> 19, and this has
> > really impacted my life in a huge way...missed my
> senior year of high
> > school, prom, graduation, and now my first year of
> college. I'm
> > slowly starting to get my life back, but if anyone
> has any ideas I
> > would be very grateful. Thanks!
> >
> > Erin
>
>
>
>
> ---------------------------------
> Yahoo! Groups Links
>
> To visit your group on the web, go to:
>
http://groups.yahoo.com/group/cyclicvomitingsyndrome/
>
> To unsubscribe from this group, send an email to:
> cyclicvomitingsyndrome-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to the
> Yahoo! Terms of Service.
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Small Business - Try our new resources site!
>
> [Non-text portions of this message have been
> removed]
>
>
>
> ---------------------------------
> Yahoo! Groups Links
>
> To visit your group on the web, go to:
>
http://groups.yahoo.com/group/cyclicvomitingsyndrome/
>
> To unsubscribe from this group, send an email to:
> cyclicvomitingsyndrome-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to the
> Yahoo! Terms of Service.
>
>
>
>
>
>
> ---------------------------------
> Discover Yahoo!
> Have fun online with music videos, cool games, IM &
> more. Check it out!
>
> [Non-text portions of this message have been
> removed]
>
>




__________________________________
Discover Yahoo!
Have fun online with music videos, cool games, IM and more. Check it out!
http://discover.yahoo.com/online.html



Sat Jun 11, 2005 3:44 am

wildstarr2004
Offline Offline
Send Email Send Email

Forward
Message #590 of 1869 |
Expand Messages Author Sort by Date

Success for my daughter after a visit to the Mayo clinic included low fat diet (no fast food that have been deep fried or anything else deep fried), high...
dale van
dale2ann
Offline Send Email
May 20, 2005
3:47 am

I take .05 mg of clonipin and there is also clonipin wafers which go under the tounge and disolve so you dont need water i find that those work great. Use them...
Nicholas Demers
methuen8
Offline Send Email
Jun 10, 2005
8:17 pm

I smoke marijauana to help with my symptoms. I would like to try marinol but I don't know of a doctor who will prescribe it for me, my doctor laughed at me...
renee sorrelle
wildstarr2004
Offline Send Email
Jun 11, 2005
3:44 am

Hello my name is Jennifer and I am 35 yrs old. I have had CVS for about 4 yrs I use to feel sick everyday around 2-4 in the morning after about 6 months the...
redciviclx2001@...
booboo3695112
Offline Send Email
Jun 11, 2005
5:10 am
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help