Hi Melody and Hillary. I'm finding it very interesting that more and more
children are getting diagnosed with CVS during hospital stays. It seems as
though the word is finally getting out to the medical community about the
reality of CVS. Just over the past year I've noticed an increase in definite
diagnoses that I hadn't seen when I first joined this group. That's good for
the children and their parents as it seems that just having a confirmed
diagnosis is a step in the right direction. I don't know if adults are finding
it as easy to get a CVS diagnosis since there are so many other adult conditions
with similar symptoms, but I suspect the information will filter through
eventually. Perhaps when CVS is recognized as much more common than once
suspected more research groups will be looking for treatments to alleviate it's
horrible symptoms. Hillary, my adult son also takes Prevacid which helps. But
when he does begin to feel nauseous, he takes zofran too. Do you still give your
daughter zofran when she prodromes now that she's on Prevacid?
Linda
----- Original Message -----
From: melody sisson
To: cyclicvomitingsyndrome@yahoogroups.com
Sent: Thursday, April 14, 2005 7:12 PM
Subject: Re: [Cyclic Vomiting Syndrome] Cyclic Vomiting Syndrome and My
Daughter


Dear hillary,

Hi my name is Melody and I have a 12 year old son named Wayne and he has what
doctors believe to be cvs.I also had never heard of this until we were in the
hospital for days and they came up with this. My son has been a severe diabetic
for 3 years and he has had so many problems since then. I was told he should be
put on anitriptalin or something like that and so we gave this medicine to him
and 2 weeks into this medicine he started having siezures. So I took him off
this medicine and right now he is not being treated for cvs. You are not alone
and pleases don't get discouraged, it seens hopeless sometimes but keep your
chin up and prey for something good. Take care, melody

ditavtmanson <ditavtmanson@...> wrote:

My name is Hillary Rhoades, I have a 3 year old daughter named Kylie
who has been diagnosed with Cyclic Vomiting. She first started
showing symptoms when she was 6 months old. At first her
pediatrician didnt know what it was that was causing my little girl
to be so sick, she kept telling me that Kylie had the flu. Then
November of last year her pediatrician recommended that we go down
to Boston Childrens hospital to see a bunch of specialists. A bunch
of tests and hospital stays later we finally had a diagnosis, Cyclic
Vomiting Syndrome. The doctors down at BCH put Kylie on Zofran and
it worked for a while but then Kylie atarted to become violently ill
once again, so the doctors then put Kylie on Prevacid, and so far it
is working fine. Kylie has had to be hospitalized a few times since
starting the Prevacid, but once she comes home she is back to her
normal self, or whatever can be considered normal under the
circumstances. Before all this I had never heard of Cyclic Vomiting
Syndrome, I looked it up on the net to learn more about it, but
still I felt alone, til' I found this web site. I hope to be able to
talk to other parents like myself and maybe get some advice on how
to handle my daughters illness and still be a mother to my 1 year
old son. Iam a single mother so Iam havin a bit of a hard time of
managing. I look forward to hearing from others in my position.





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