thanks for replying my son sodium levels dropped so much one time he
had seziors and that is when we got the sodium diagnoses but i realy
dought that is what it is because he continues to get sick. I wonder
if a drop in blood levels are common with CVS. I am going to try to
go see an GI doctor soon I know of a realy good one at our childrens
hospital so I will try them. Thank you.
April
--- In cyclicvomitingsyndrome@yahoogroups.com, Dita Manson
<ditavtmanson@y...> wrote:
> We went to see a gastroenterologist at Boston Childrens Hospital.
Her name is Doctor Tully. before we were recommended to BCH we went
to Maine Medical Center, but the doctors there were of no help they
kept trying to tell me that Kylie was hypoglycemic because when she
got sick her glucose level would drop severely. The doctors at Maine
Med took Kylie off of everything she had been used to eating,
fructose, sucrose, lactose and all that. She was only allowed to eat
fresh vegetables and to drink soy milk. This did not help her at all
she was sick again in no time and that is when we were referred to
Boston Childrens Hospital. Kylie has been sick off and on but I know
that when she is cared for by Dr.Tully that she is in great hands.
You should talk to your sons pediatrician aboiut seeing a
gastroenterologist A.S.A.P because sometimes Cyclic Vomiting is
misdiagnosed as other things and the children suffering from CVS do
not get the care they need and so they get worse. Good Luck and
> keep intouch I'd like to hear about your progress and any news on
your sons health.
>
>
Hillary
>
> aprilgri <no_reply@yahoogroups.com> wrote:
>
> I am glad to see some one else that posted on here I had posted
for
> the first time a couple of days ago and had not seen any one else
> responed. My son is also always sick on and off. I am not a single
> mother I don't know how I would do it if I was. I am not even sure
> if CVS is what my son has I think so but he has also had problems
> with his sodium levels once he gets dehydrated so the doctors
think
> it might be his sodium and have put him on restricted fluid but it
> realy has not helped much. He has still been sick atleast once
every
> 2 -3 weeks. What kind of doctor did you got ot for that diagnosis
of
> CVS. This low sodium thing just does not make sence because his
> sodium goes down after days of vomiting not before. I would realy
> like to get this figured out and atleast have a name for what is
> going on.
> April
> --- In cyclicvomitingsyndrome@yahoogroups.com, "ditavtmanson"
> <ditavtmanson@y...> wrote:
> >
> > My name is Hillary Rhoades, I have a 3 year old daughter named
> Kylie
> > who has been diagnosed with Cyclic Vomiting. She first started
> > showing symptoms when she was 6 months old. At first her
> > pediatrician didnt know what it was that was causing my little
> girl
> > to be so sick, she kept telling me that Kylie had the flu. Then
> > November of last year her pediatrician recommended that we go
down
> > to Boston Childrens hospital to see a bunch of specialists. A
> bunch
> > of tests and hospital stays later we finally had a diagnosis,
> Cyclic
> > Vomiting Syndrome. The doctors down at BCH put Kylie on Zofran
and
> > it worked for a while but then Kylie atarted to become violently
> ill
> > once again, so the doctors then put Kylie on Prevacid, and so
far
> it
> > is working fine. Kylie has had to be hospitalized a few times
> since
> > starting the Prevacid, but once she comes home she is back to
her
> > normal self, or whatever can be considered normal under the
> > circumstances. Before all this I had never heard of Cyclic
> Vomiting
> > Syndrome, I looked it up on the net to learn more about it, but
> > still I felt alone, til' I found this web site. I hope to be
able
> to
> > talk to other parents like myself and maybe get some advice on
how
> > to handle my daughters illness and still be a mother to my 1
year
> > old son. Iam a single mother so Iam havin a bit of a hard time
of
> > managing. I look forward to hearing from others in my position.
>
>
>
>
>
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