I am glad to see some one else that posted on here I had posted for
the first time a couple of days ago and had not seen any one else
responed. My son is also always sick on and off. I am not a single
mother I don't know how I would do it if I was. I am not even sure
if CVS is what my son has I think so but he has also had problems
with his sodium levels once he gets dehydrated so the doctors think
it might be his sodium and have put him on restricted fluid but it
realy has not helped much. He has still been sick atleast once every
2 -3 weeks. What kind of doctor did you got ot for that diagnosis of
CVS. This low sodium thing just does not make sence because his
sodium goes down after days of vomiting not before. I would realy
like to get this figured out and atleast have a name for what is
going on.
April
--- In cyclicvomitingsyndrome@yahoogroups.com, "ditavtmanson"
<ditavtmanson@y...> wrote:
>
> My name is Hillary Rhoades, I have a 3 year old daughter named
Kylie
> who has been diagnosed with Cyclic Vomiting. She first started
> showing symptoms when she was 6 months old. At first her
> pediatrician didnt know what it was that was causing my little
girl
> to be so sick, she kept telling me that Kylie had the flu. Then
> November of last year her pediatrician recommended that we go down
> to Boston Childrens hospital to see a bunch of specialists. A
bunch
> of tests and hospital stays later we finally had a diagnosis,
Cyclic
> Vomiting Syndrome. The doctors down at BCH put Kylie on Zofran and
> it worked for a while but then Kylie atarted to become violently
ill
> once again, so the doctors then put Kylie on Prevacid, and so far
it
> is working fine. Kylie has had to be hospitalized a few times
since
> starting the Prevacid, but once she comes home she is back to her
> normal self, or whatever can be considered normal under the
> circumstances. Before all this I had never heard of Cyclic
Vomiting
> Syndrome, I looked it up on the net to learn more about it, but
> still I felt alone, til' I found this web site. I hope to be able
to
> talk to other parents like myself and maybe get some advice on how
> to handle my daughters illness and still be a mother to my 1 year
> old son. Iam a single mother so Iam havin a bit of a hard time of
> managing. I look forward to hearing from others in my position.