Hi would just like to say a few words about this
Our son Gary is 11 years old and has a severe episode about 8 week's
which put's him in hospital on a drip for 5 to 6 day's home for 2
more till he recovers. He has been on L-Carnitor for the past 3 mnth
his dose is 2 x 10 ml per day,which unfortunately has NO effect what
so ever,i am not to sure weather to continue this,has anyone got any
advice,we are thinking of videoing his next attack,as i heard the uk
may do a program on this awful illness,
Gary has suffered since he was 5years old,was not diagnosed till he
was 8 & is the only child to have this illness on the Isle Of Man
where we live
Thank you for reading this
Carole & Dave