Hi Jen and all -- I'm new to this group too, and haven't posted an intro yet-
My son (3 1/2) has a VERY similar symptom picture to your daughter's current
pattern- and he has recently been diagnosed with CVS which began before he was
one year old (process of eliminating other disorders thru testing)-- He also
awakes in the middle of the night/early am- every 5 weeks (plus or minus 3
days)-- not only does he vomit yellow bile- but brown blood? many times an hour-
episodes lasting at least 24 hours (not vomiting continuously- but everytime he
drinks--and sleeping in between) and sometimes 4 days before he appears normal.
He is currently on Cyproheptadine (an antihistamine)that supposedly is effective
for some with CVS-- but I'm not convinced it is helping (at first his episodes
appeared somewhat shorter with meds..but last 2 were long again). We are
considering accupuncture...Has anyone tried this treatment? Any other treatment
suggestions? Also my son often ends up with a red cheek after episodes (from the
acid?)- and today has 2 very red bumpy cheeks from his episode this past week?
Anyone else? and any suggestions for treatment? So sorry for all of us affected
by this! but glad to find you...(I now know there is a group for everyone:)
Thanks, Mimi


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