Jamie's experience dictates otherwise -- Zofran is effective during an
episode, but it takes 15-25 minutes to take effect, so you need to keep
it down that long. Not sure if it's recommended for a 9-year old, but
mayble alternate forms of zofran and a sedative? I know pharmacies
around here will make topical rubs, I know GlaxoSmith-Kline makes an IV
version of Zofran.

Hope this helps!

-----Original Message-----
From: dale van [mailto:dale2ann@...]
Sent: Sunday, December 26, 2004 9:38 PM
To: cyclicvomitingsyndrome@yahoogroups.com; Liv Boughn
Subject: Re: [Cyclic Vomiting Syndrome] New to the Board



The Zofran will not be helpful if started once sick. You need to start
it the minute she feels nauseated. There is a protocol for sedation and
IV's if sick enough to go to the ER. Your hospitalization seemed
lengthy. They need to sedate and hydrate rather than antiemitics. Watch
her diet and aim for low fat and high carb and protein. Make sure she
has lots of sleep and start looking for her " triggers" to know them.
(Stress, tired, greasy food, air travel, etc. Keep a diary of events as
to dates, location, possible triggers, patterns, etc. I don't know
where you are from but if anywhere near Childrens Hospital in Chicago
they have a CVS unit. Minimally call and ask for their literature.
We have all been there and many of us have seen our children get better.
Hang in there and use this organization as a resource. You will soon
know more than most of the doctors who don't know much about it if
anything.
Good luck,
Ann

Beth Trask <dtnbt@...> wrote:

After 4 years of trips to the ER with ongoing bouts of vomiting my
daughter was diagnosed with CVS this week. 5 days of being sick at home
followed by 7 days in the hospital, and now 3 ays back at home sick
still, I am hoping that this lets up soon. Hard to sleep at night as I
am sure you all well know. She is down 12 pounds and tips the scale at
a slight 57 pounds (she is 9 years old). She's on Zofran, which she has
been puking right through it like it had no effect, she also had
prevacid in the hospital, no help there. So she is in for a checkup
tomorrow morning. I think that they felt sorry for us and let us come
home for Christmas, hoping that we won't be readmitted to the hospital
again due to dehydration...trying to keep fluids in her. Looking for
the light at the end of the tunnel!

Beth




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