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Reply | Forward Message #464 of 1869 |
Re: [Cyclic Vomiting Syndrome] getting help



Hi Wild

i have had CVS for over 11 yrs and didn't find out about what it was til i
accidently found the offical CVSA ( Cyclic Vomiting Synfrome Assoc.) and one of
there moderators gave me the name of a CVS Doc in Boston, i was told for yrs it
was in my head or that your bringing all this on yourself, the first thing i did
after seeing the CVS Doc in Boston and being told i have CVS was to make a Appt
with my old GI and PCP i gave them the report from my new GI and said Hey i
have been seeing you 2 for 10 yrs and you couldn't find it and told me its in my
head, i saw a Real Doc and was told what it was in 20 mins she had all my
records for the last 10 yrs. i them told they they were fired becouse they were
inconfadent

If you go to

www.cvsaonline.org

maybe they have a CVS Doc where you are

Smoke


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Wed Nov 10, 2004 6:19 am

smokeater4444
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Message #464 of 1869 |
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Hi, my name is Renee & I am 43 yrs. old. I am a new member & new @ this but I would like to share my life's story so that others can see that they aren't crazy...
wildstarr2004
Offline Send Email
Nov 10, 2004
5:59 am

Hi Wild i have had CVS for over 11 yrs and didn't find out about what it was til i accidently found the offical CVSA ( Cyclic Vomiting Synfrome Assoc.) and one...
Smoke
smokeater4444
Online Now Send Email
Nov 10, 2004
6:19 am

Smoke, u r so funny. i like that u fired your docs, i would like 2 go 2 every doc that has treated me & do the same but there have been so very many of them. ...
renee sorrelle
wildstarr2004
Offline Send Email
Nov 10, 2004
6:50 pm

Thats what we're doing in the CVSA right now is a Email campain to the media Doctors and TV shows. www.cvsaonline.org and not sure about here BUT, The...
Smoke
smokeater4444
Online Now Send Email
Nov 10, 2004
8:26 pm

This is the first month ever that my Sarah , age 7 has is very late or has skipped???? an episode.......she has the early morning vomiting and throwing up 40...
Vicki Tripido
mothROtwins
Offline Send Email
Nov 11, 2004
4:45 am

I went to the Puke walk in CT too, it was the first time in over 10 yrs i didn't feel like a freak, and when i got sick, it was like it didn't matter,no one...
Smoke
smokeater4444
Online Now Send Email
Nov 11, 2004
5:56 am

Renee, I am always amazed (although I shouldn't be anymore) that people would have to suffer without any help for this illness for so many years. I still...
Susan Rosmann
srosmann
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Nov 10, 2004
6:51 am

Susan, so sorry to hear that your son has been through so much. it is very hard to live with this when no one seems to be able to help you. wish we all were...
renee sorrelle
wildstarr2004
Offline Send Email
Nov 10, 2004
8:14 pm
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