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Hi, new to the group   Message List  
Reply | Forward Message #404 of 1869 |
Re: [Cyclic Vomiting Syndrome] Hi, new to the group

Well the first time was Nov. of last year. We had his birthday party
things were fine, everyone was settling down and tired after the 2hr
party in the afternoon and about 7 or 8pm he started running a low
grade fever and complaining of a really bad stomach ache(kid knows
pain, high pain tolerance so takes alot for him to complain). After
him thrashing around for 4 hours of severe stomach cramps coming in
waves he threw up for about 15min and felt better. Had a tummy ache
the next day. 1 month later another episode, this time started
throwing up at 10ish pm and threw up and dry heaved all night. He had
a stomach ache all day the next day. Same as the other 2 the 5
months. June was different. These episodes got more frequent up to
1 to 2 times a week verses every month. July 2 episodes and knocking
on wood nothing since the end of July. All of these come at night
not always with a fever but ALWAYS with severe stomach cramping and
throwing up. Some times one episode of throwing up, sometimes
mulitple. There are 5 people in my family plus extened memebers that
are never sick around when he is so not actual "illness" that is why
we are trying to figure out what is going on with him. Hope this
helps you, help me.

Jenny

--- In cyclicvomitingsyndrome@yahoogroups.com, Vicki Tripido
<mothrotwins@y...> wrote:
> You didnt really describe what happens in your sons episodes , it
is hard to tell without that info and the time of them and how long
in between if it is CVS. My 6 yr old also has it every 5 weeks for 3
day intervals , vomits up to 40 or 50 times within 3 to 4 hours.
> I have another question for people out there , up till now Sarah
hasnt had any problem with her throat but lately , I notice she has
had an "itchy" throat , tries to clear it a lot and sometimes makes
guttural loud throat noises out of nowhere . I suppose she could
have throat damage from the vomiting , guess I should have it
checked , any one?
>
> arichmykal <ArichMykal@a...> wrote:
> Hi everyone,
> I am new to this group. I have an almost 5 year old son who
has
> been through heck and back all his life with multiple problems.
The
> biggest problem we haven't been able to figure totally out is his
GI
> problems. He underwent an endoscopy on Aug 23 to rule out
> eosinophils causing his problems and to make sure his Prevacid was
> prevent GERD damage. Needless to say it was totally normal. While
I
> am happy it was normal I was also kinda hoping to get some answers
to
> his problems. I asked the GI nurse what are next step was and she
> told me the GI mentioned per our symptoms abdominal migraines and
> prescribed Periactin. I am to call them back work or not in 2
weeks
> to let them know. So I have a couple of questions.
> 1)Is abdominal migraines and CVS the same thing?, 2)Is he on
the
> right course of treatment?, and 3)Is there any actual tests that
can
> be done to diagnose this disease without a doubt?
> Thanks in advance. I appologize now if something doesn't make
> sense as I typed this once and lost my whole post so I am typing it
> again. I am sure as I learn more about this disease I will have
more
> questions.
>
> Jenny in IL
> Mykal(8) asthma, enviro allergies
> Noah (almost 5) GERD, peanut allergic, gluten intolerant,
possible
> abdominal migraines?, enviro allergies and more I am probably
> forgetting
> Owin (16 months) allergic to milk, enviro allergies
>
>
>
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> [Non-text portions of this message have been removed]




Sat Sep 4, 2004 12:04 am

arichmykal
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Message #404 of 1869 |
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Hi everyone, I am new to this group. I have an almost 5 year old son who has been through heck and back all his life with multiple problems. The biggest...
arichmykal
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Sep 3, 2004
6:09 pm

You didnt really describe what happens in your sons episodes , it is hard to tell without that info and the time of them and how long in between if it is CVS....
Vicki Tripido
mothROtwins
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Sep 3, 2004
10:29 pm

Well the first time was Nov. of last year. We had his birthday party things were fine, everyone was settling down and tired after the 2hr party in the...
arichmykal
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Sep 4, 2004
12:05 am

Jenny, Are you sure he has a fever? Or is it just that his head gets really warm? I ask this because my son's head gets really warm just before he vomits but,...
Susan Rosmann
srosmann
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Sep 4, 2004
12:52 am

I am pretty sure at least the first time he had a fever but after that you know I don't think I actually checked besides feeling him. Yes he is really really...
arichmykal
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Sep 4, 2004
1:18 am

In a way , it doesnt really sound like CVS but it could be ......dont know why I am feeling like it isnt except that the episodes are just usually so classic...
Vicki Tripido
mothROtwins
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Sep 4, 2004
4:47 am

Hello, I will be out of the office from August 27, 2004 until September 7th 2004. If you have any questions or pressing matters, please feel free to contact...
Shari Solomon
shari_solomon
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Sep 7, 2004
2:14 pm

Hello, I will be out of the office from August 27, 2004 until September 7th 2004. If you have any questions or pressing matters, please feel free to contact...
Shari Solomon
shari_solomon
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Sep 7, 2004
2:24 pm

Jenny, Like Vicki said, "keep a diary". I get a piece of paper out and list the times he throws up and what I gave him to drink.(gatorade is best - better than...
Susan Rosmann
srosmann
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Sep 4, 2004
7:55 pm

I have a diary of what and when and what he ate. I just never thought about fever except the very 1st time. He drinks only water and is just now starting to...
arichmykal
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Sep 5, 2004
1:47 am

Hi Jenny, One more thing. Another way these doctors know if it is indeed CVS, is if the medicine (in your case periactin) actually works. Some doctors don't...
Susan Rosmann
srosmann
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Sep 5, 2004
8:43 pm

Hello, I will be out of the office from August 27, 2004 until September 7th 2004. If you have any questions or pressing matters, please feel free to contact...
Shari Solomon
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Sep 7, 2004
2:14 pm

Hello, I will be out of the office from August 27, 2004 until September 7th 2004. If you have any questions or pressing matters, please feel free to contact...
Shari Solomon
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Sep 7, 2004
2:24 pm

Hello, I will be out of the office from August 27, 2004 until September 7th 2004. If you have any questions or pressing matters, please feel free to contact...
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Hello, I will be out of the office from August 27, 2004 until September 7th 2004. If you have any questions or pressing matters, please feel free to contact...
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