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Hi, new to the group   Message List  
Reply | Forward Message #403 of 1865 |
Re: [Cyclic Vomiting Syndrome] Hi, new to the group

You didnt really describe what happens in your sons episodes , it is hard to
tell without that info and the time of them and how long in between if it is
CVS. My 6 yr old also has it every 5 weeks for 3 day intervals , vomits up to
40 or 50 times within 3 to 4 hours.
I have another question for people out there , up till now Sarah hasnt had
any problem with her throat but lately , I notice she has had an "itchy" throat
, tries to clear it a lot and sometimes makes guttural loud throat noises out of
nowhere . I suppose she could have throat damage from the vomiting , guess I
should have it checked , any one?

arichmykal <ArichMykal@...> wrote:
Hi everyone,
I am new to this group. I have an almost 5 year old son who has
been through heck and back all his life with multiple problems. The
biggest problem we haven't been able to figure totally out is his GI
problems. He underwent an endoscopy on Aug 23 to rule out
eosinophils causing his problems and to make sure his Prevacid was
prevent GERD damage. Needless to say it was totally normal. While I
am happy it was normal I was also kinda hoping to get some answers to
his problems. I asked the GI nurse what are next step was and she
told me the GI mentioned per our symptoms abdominal migraines and
prescribed Periactin. I am to call them back work or not in 2 weeks
to let them know. So I have a couple of questions.
1)Is abdominal migraines and CVS the same thing?, 2)Is he on the
right course of treatment?, and 3)Is there any actual tests that can
be done to diagnose this disease without a doubt?
Thanks in advance. I appologize now if something doesn't make
sense as I typed this once and lost my whole post so I am typing it
again. I am sure as I learn more about this disease I will have more
questions.

Jenny in IL
Mykal(8) asthma, enviro allergies
Noah (almost 5) GERD, peanut allergic, gluten intolerant, possible
abdominal migraines?, enviro allergies and more I am probably
forgetting
Owin (16 months) allergic to milk, enviro allergies



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Fri Sep 3, 2004 10:29 pm

mothROtwins
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Forward
Message #403 of 1865 |
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Hi everyone, I am new to this group. I have an almost 5 year old son who has been through heck and back all his life with multiple problems. The biggest...
arichmykal
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Sep 3, 2004
6:09 pm

You didnt really describe what happens in your sons episodes , it is hard to tell without that info and the time of them and how long in between if it is CVS....
Vicki Tripido
mothROtwins
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Sep 3, 2004
10:29 pm

Well the first time was Nov. of last year. We had his birthday party things were fine, everyone was settling down and tired after the 2hr party in the...
arichmykal
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Sep 4, 2004
12:05 am

Jenny, Are you sure he has a fever? Or is it just that his head gets really warm? I ask this because my son's head gets really warm just before he vomits but,...
Susan Rosmann
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Sep 4, 2004
12:52 am

I am pretty sure at least the first time he had a fever but after that you know I don't think I actually checked besides feeling him. Yes he is really really...
arichmykal
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Sep 4, 2004
1:18 am

In a way , it doesnt really sound like CVS but it could be ......dont know why I am feeling like it isnt except that the episodes are just usually so classic...
Vicki Tripido
mothROtwins
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Sep 4, 2004
4:47 am

Hello, I will be out of the office from August 27, 2004 until September 7th 2004. If you have any questions or pressing matters, please feel free to contact...
Shari Solomon
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Sep 7, 2004
2:14 pm

Hello, I will be out of the office from August 27, 2004 until September 7th 2004. If you have any questions or pressing matters, please feel free to contact...
Shari Solomon
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Sep 7, 2004
2:24 pm

Jenny, Like Vicki said, "keep a diary". I get a piece of paper out and list the times he throws up and what I gave him to drink.(gatorade is best - better than...
Susan Rosmann
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Sep 4, 2004
7:55 pm

I have a diary of what and when and what he ate. I just never thought about fever except the very 1st time. He drinks only water and is just now starting to...
arichmykal
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Sep 5, 2004
1:47 am

Hi Jenny, One more thing. Another way these doctors know if it is indeed CVS, is if the medicine (in your case periactin) actually works. Some doctors don't...
Susan Rosmann
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Sep 5, 2004
8:43 pm

Hello, I will be out of the office from August 27, 2004 until September 7th 2004. If you have any questions or pressing matters, please feel free to contact...
Shari Solomon
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Sep 7, 2004
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Hello, I will be out of the office from August 27, 2004 until September 7th 2004. If you have any questions or pressing matters, please feel free to contact...
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