The CVSA list of professional advisors includes John M Anderson, MD, professor
of pediatrics- GI, University of Texas, Dallas. You might see if he will at
least evaluate your son and make medicine recomendations or maybe they can refer
you to someone close who does know about CVS. I live in Oregon and my daughter
lives in LA and we made a trip to the Scottesdate Mayo clinic for our evaluation
with Dr. Olden. If you have no one locally then maybe a referral by your primary
health care provider will be covered by insurance. Ours was denied, but after
appeal they are now paying 6 months later.
Good luck,
Ann

vanessamorehead <vanessamorehead@...> wrote:
Hi, my son has had this since, he was 3 years old, he is now 18,and
a month ago we found out what it was via internet and self
diagnosis.none of our local doctors know anything about it. the
doctor gave him Zanex to treat the panic attacks....my son can
finally eat...great but this is a highly addictive drug....can
anyone point me to another doctor to help? all response will be
answered...thank you


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