Anne, can you think of anything that started your daughter's episodes again
after a 4 year absence? That's such a shame. My 27 year old son has had CVS
with abdominal pain for almost 4 years. He'd be sick every couple of months but
from May 6 of this year he too has been sick almost every day. He has been
taking zofran for nausea which does, gratefully, prevent vomiting but it doesn't
generally prevent the extreme pain from starting. For that he has to take
Ultraset or Stadol. Unfortunately last summer he had been accused of a felony
he did not commit and for almost a year has been fighting it. On May 6 the
charge was finally dropped and, something like people who try to hold themselves
together through a crises and when it's all over fall apart, he started becoming
ill almost on a daily basis. He'd take zofran and be okay for some hours. Then
later after eating something, he'd be sick again. I have believed that the end
of the nightmare he went through prompted all this. It's been so continual that
we thought it might be something other than CVS, like a bacterial infection so
he's on Bactrim right now. But after reading your post, Anne, I'm beginning to
wonder. Yours is the post I've read about non-stop episodes. Conor's also on
so many other meds, it's scary. Lately he's been getting kind of "spacey" hours
before an episode comes on. His speech becomes a little slurred and he gets
weak and wobbly. We even checked his blood glucose level to make sure he wasn't
hypoglycemic or hyperglycemic but it was normal. Anyone else experience this?
Linda
----- Original Message -----
From: E. Anne Grady
To: cyclicvomitingsyndrome@yahoogroups.com
Sent: Tuesday, June 15, 2004 10:00 AM
Subject: Re: [Cyclic Vomiting Syndrome] Zofran


I am new to this group and have been so busy trying to control my daughter's
cycle that I have been unable to post anything. She is doing better now, and I
see a subject I have minimal knowledge about: Zofran.
My daughter had been in remission for four years, however, she started
vomiting May 10th and vomited numerous times each day. After two local
admissions, numerous ER visits, a trip to Chicago and one to Indianapolis, we
are finally achieving some success managing this never-ending cycle. My daughter
is 13 yrs old, and started Zofran approximately three weeks ago. Once it is
absorbed into her system, it works for her. she is typically fine for the
following 6-10 hours. She receives almost immediate relief from all symptoms,
including the severe stomach ache, and can even eat once the Zofran has been
absorbed into her system. As soon as the Zofran wears off, however, she begins
to vomit again. I have heard of a lot of children that are taking Zofran for
CVS, and of some who take Zofran with Atavan, or other meds, enhancing the
effect and receiving positive results from the mixture. Our GI doc does not want
to add anything new to her regimen because we have removed some other meds and
want to see if that could have been what was triggering the episodes. I am happy
with the effectiveness of Zofran, I just wish we could stop the cycle
completely.
Anne

----- Original Message -----
From: Chris Hendrickx
To: cyclicvomitingsyndrome@yahoogroups.com
Sent: Tuesday, June 15, 2004 12:01 PM
Subject: RE: [Cyclic Vomiting Syndrome] Zofran


> Is Zofran approved for children?

Not sure on this one.

> How fast does it start to work?

For my wife, 20-30 min.

> Does it ever stop an episode or does it just lessen the symptoms?

Just lessens the nausea, it's still there though. Like getting a shot of
morphine for a broken leg -- not normal, but better.

> Does anyone know how it works or what kind of medication it is?

Try: http://www.gsk.com/products/zofran_us.htm




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