Chris, you are an example of a wonderful support system that can make all the
difference in the world!! Your wife is a lucky woman and it sounds like both of
you have come to grips with the fact that this is how it is, there is some help
that allows you to live normal for the most part and you have identified your
"stressors" and tune into them. I think that when we were looking for an answer
that was different than CVS we didn't give creadence to the stressors as much as
we do now that CVS is most likely the diagnosis. My daughter also knows that
lack of adeqate sleep, not eating frequent small meals that consist of high
protein/high carbohydrate and low fat foods, stress, her menses and airline
travel all contribute to her events. She is now really focused on minimizing
all of the above and taking her Zofran at the first sign of true nausea. (My
daughter is learning the difference between needing to eat and real nausea and
sometimes just eating will take away a feeling of
nausea.) She is also trying to not set herself up for failure by letting
those around her know that she just might not be able to do XXXX because of her
illness and then if she plans to do XXXX and doesn't feel well she is no longer
following thru just to not disappoint, which in the past added stress and almost
always illness. We have been greatly helped by the networking between other CVS
association members, CVS articles and our own trial and error. I will say that
we felt really "hopeless" prior to being a part of the CVS association, so to
just hear others stories, suggestions, trials and errors and to know that my
daughter is not alone in her journey has been tremendously helpful.
Ann

Chris Hendrickx <chris.list@...> wrote:
> Does CVS ever just go away?
Not with Jamie, it just changed. More nausea, less vomiting. Depends on
the individual.

> Does it get worse as people get older?
Again, depends on the individual.

> My doctor said he could grow out of it. Does that happen more often
then not?
From what I understand, yes.

> If any parents with small children with CVS or those who have had CVS
since childhood
> could share with me some insight, I would greatly appreciate it!

Jamie, my wife, has had episodes since age 3, was diagnosed at 5, on the
current meds since age 22, and is not 26. Episodes still occurr every 3
months or so, but very little vomiting. She works a full-time job, even
works OT and otherwise is "normal" other than being dick for 3-5 days
once every 3 months. Is CVS an aweful thing se'd love to be rid of? Oh
yeah. Does she worry she'll be sick at an inopportune moment? Not as
often as she used to, she's learing what her triggers are, paying more
attention to the signals her body gives her (she tends to get sick if
she's overly tires or doesn't eat right). Outwardly, unless you knew she
had CVS, she's another person on the street.

I hope you son does grow out of it, but please realize it is possible to
live with CVS with some minor adjustments to your overall lifestyle and
some decent health insurance. :)




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