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it's been a while   Message List  
Reply | Forward Message #289 of 1869 |
Re: [Cyclic Vomiting Syndrome] it's been a while

I know for me I never have any warnings and don't know what causes it. I also
take Zofran but since my last episode in May of last yr my doctor has me take
the zofran the minute my stomach gets upset so far it has worked it stops
before it starts. When I use to take it I was already vomiting but like he says
its to late if just settles it doesn't make it stop.


[Non-text portions of this message have been removed]




Tue Feb 24, 2004 1:14 am

booboo3695112
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Message #289 of 1869 |
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My name is Caitlin, I used to have CVS, was dx at age 4, I had about 40 episodes between the ages of 4 and 16. Since then I have been episode free, I believe...
dolphins8124
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Feb 20, 2004
6:59 am

What medicine have you been on in the last 2 yrs? dolphins8124 <SCMB18Cait@...> wrote:My name is Caitlin, I used to have CVS, was dx at age 4, I had about ...
dale van
dale2ann
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Feb 20, 2004
3:06 pm

... have CVS, was dx at age 4, I had about ... Service....
marielekites
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Feb 22, 2004
12:27 am

I know for me I never have any warnings and don't know what causes it. I also take Zofran but since my last episode in May of last yr my doctor has me take the...
redciviclx2001@...
booboo3695112
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Feb 24, 2004
1:15 am

That is wonderful news. I just sent your message to my daughter who has severe CVS. The frustration for her is that her insurance is limiting her Zofran to...
dale van
dale2ann
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Feb 24, 2004
2:06 am

Jamie (my wife, 26 years old) and I are running into the same problem, our insurance doen't know about CVS, so they limit Zofran to 36 a order ($1000 worth)....
Chris Hendrickx
chrishendrickx
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Feb 26, 2004
12:34 pm

Thanks Chris. It is always great to hear about someone getting good response to meds. I would love to hear about Jamie's medications just to see what is...
dale van
dale2ann
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Feb 26, 2004
3:18 pm

Since my 6 year old wakes up with her episodes, does anyone know if the Zofran would help at bedtime when she is well for the next morning since the amt. of...
Vicki Tripido
mothROtwins
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Feb 27, 2004
3:29 am

Hi Vicki, I haven't been to the Chicago unit bacause my daughter is almost 30 and too old for them to take as a patient, but they were kind enough to suggest...
dale van
dale2ann
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Feb 27, 2004
3:31 pm

Jamie's on Zofran and ativan when cycling. Daily is propranolol, Prilosec (OTC), Paxil, Amitryptilyne. Episodes since age 3, DIagnosed at age 5, Drugs since...
Chris Hendrickx
chrishendrickx
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Feb 27, 2004
3:50 am

Thanks Chris. Chris Hendrickx <chris.list@...> wrote:Jamie's on Zofran and ativan when cycling. Daily is propranolol, Prilosec (OTC), Paxil,...
dale van
dale2ann
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Feb 27, 2004
4:10 pm

I now take Zofran and I take it the minute my stomach is a little upset my doctor says when I am already vomiting its to late it will help a little but not ...
redciviclx2001@...
booboo3695112
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Feb 27, 2004
5:05 am

I also had the same problem with the quanity of Zofran they only let me have 10 a month but if you can't tolerate Phenegran which is a cheaper one then they...
redciviclx2001@...
booboo3695112
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Feb 27, 2004
5:09 am

In a message dated 2/27/2004 7:33:25 AM Pacific Standard Time, dale2ann@... writes: the My doctor wanted me to take Zofran the minute my stomach feels...
redciviclx2001@...
booboo3695112
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Feb 28, 2004
12:23 am

Caitlin, I have a 6 yr old that has had CVS every month for 3 days like clockwork since she was 6 months old....could you tell me about your episodes? We have...
Vicki Tripido
mothROtwins
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Feb 23, 2004
5:14 am
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