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Reply | Forward Message #246 of 1865 |
Hello all,
Sorry my last message was blank don't know what happened
there. Anyway I'm 18 living in the UK and have just been recognized
with having CVS the British doctors know basically nothing about CVS
which is more frustrating, though after nearly 4 years of being
misdiagnosed and going through medication after medication and test
after test it a relief to know there's a name for my illness and
it's not just all in my head.

When a attack comes on I can normally feel a wave of nausea come
over me, and I'm dying for the toilet, and within 5 minutes I'm
vomiting continually for 1-6 days and the salvia that comes up is
never ending and I have fever symptoms and feel so ill I think I'm
going to die, these bouts come every month or so sometimes they come
on because it's time for another one, or another main trigger is
stress which is pretty hard to avoid.

CVS is controlling my life I live in fear of another attack coming
on I had to give up college and work due to missing so much time and
now living on disability. My social life is becoming non existent. I
don't know where to go from here? As anyone over come these bouts
successfully?





Tue Sep 30, 2003 2:10 pm

welshsarah18
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Message #246 of 1865 |
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Hello all, Sorry my last message was blank don't know what happened there. Anyway I'm 18 living in the UK and have just been recognized with having CVS the...
welshsarah18
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Sep 30, 2003
2:10 pm

My daughter is 20 with CVS. I am looking for a doctor in the DesMoines Iowa area who is familiar with CVS. She had a bad episode last night and we did the ER...
mcknack
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Sep 12, 2004
4:50 pm

I found this online. I hope this helps you. There is the hospital in Des Moines, Dr.Craig Logemann,phone number, and an email address. Good Luck, Susan Nausea...
Susan Rosmann
srosmann
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Sep 13, 2004
5:30 am

University of Iowa pediatrics has a gew doctors familiar with CVS, not sure if they have any adult doctors, but it might be worth a phone call for ...
Chris Hendrickx
chrishendrickx
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Sep 13, 2004
1:07 pm

My 28 year old boyfriend was just diagnosed with CVS to all of our relief-finally an answer to his pain and suffering for the 5 years. He had attacks quite...
khavel13
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Jul 28, 2005
10:25 pm

Hi Kelly, Is your boyfriend on Elavil? How long has he been taking it, if so? Does it make him feel crummy other than just the sleepy part? Where are you...
Brittany Davis
brittdavis88
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Jul 29, 2005
8:13 am

kelly im 23 and i have had cvs for 3 yrs now lost 4 jobs due to the lack of compassiona nd understanding we want to work just cant be sresponsible. I would...
Nicholas Demers
methuen8
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Aug 13, 2005
4:11 am

My son has CVS... finally diagnosed last year. He's had this problem since he was an infant. He is now 9yrs old. He has reoccurring symptoms every 3-6months....
kerii18
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May 1, 2008
12:27 pm

why depakote? and what is cypro? hope he feels better.( i have a 5 year old son:) what else have you tried? 3 to 6 month in between really is good. curious...
Hailey Slowik
h_slowik
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May 1, 2008
6:23 pm

Yes, my 9yr old son takes depakote. His neurologist stated that CVS is related the the Migrain family. He explained that basically he has a checmical...
kerii18
Offline
May 2, 2008
2:53 am

My son was on amytriptyline for migraines and daily headaches. Since going on this med., he continued to have daily headaches but was having migraines only...
ohgr8nowwhat
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May 22, 2008
5:44 am
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