Make sure that he does completely quit for 6 weeks because that is how long it
takes to detox your body.  I hope it works.  Once he starts feeling better, I am
sure he will be ready to face the world again.  I'll keep my fingers crossed for
you and your son.  Mary




________________________________
From: Linda Piersma <lindapiersma1@...>
To: cyclicvomitingsyndrome@yahoogroups.com
Sent: Wednesday, June 17, 2009 5:39:44 PM
Subject: Re: [Cyclic Vomiting Syndrome] Appt. with Dr. Feldman





If it is indeed cannabanoid hypermesis in my son's case too, the next hurdle for
him will be getting back into society again. He's been debilitated by these
episodes for the past 9 years. But we'll cross that bridge when we get to it,
right?

----- Original Message -----
From: Mary Ward
To: cyclicvomitingsyndr ome@yahoogroups. com
Sent: Wednesday, June 17, 2009 9:39 AM
Subject: Re: [Cyclic Vomiting Syndrome] Appt. with Dr. Feldman

My son has not had an eposide since October-8 months nor does he have any
nausea. It completely went away went he stopped smoking on a daily basis. He
still smokes occasionally- a little on the weekends but not to where it reaches
toxic levels. He is healthy as can be. For him it was definitely the pot. We are
all so relieved since he is off to college in Aug. and could not go if he was
still having episodes.
As for them talking about pot on T.V.and relating it to CVS, I feel as if we are
more in the know from living it than anyone else. When I first mention it on
this chatroom, most people thought I was crazy because pot helps them which I am
sure it does. My niece is a nurse who went to a seminar on CVS and thought she
was crazy too. I feel as if maybe my son didn't really have CVS but what they
call cannabanoid hypermesis(look it up online). Who knows? I'll I know is that
it was the answer for my son.
I am so happy for you that your son has agreed to try it. I pray that it works
for it is painful watching your child go through this and not being able to
help. Keep me informed.
Mary

____________ _________ _________ __
From: Linda Piersma <lindapiersma1@ verizon.net>
To: cyclicvomitingsyndr ome@yahoogroups. com
Sent: Tuesday, June 16, 2009 5:25:02 PM
Subject: [Cyclic Vomiting Syndrome] Appt. with Dr. Feldman

Hi Mary, Tina and all. We met with Dr. Feldman a week ago Monday. He is indeed a
very kind and very knowledgeable man. He had just returned from Chicago where he
met with 4 other CVS specialists. He mentioned that he also recently spoke to a
group of 145 gastro doctors and only a couple of them had even heard of cvs.
Sad, isn't it?

The long and short of our meeting - our son definitely has cvs, which was no
surprise to us. But it did give us a sense of relief to have him tell us that so
much of what he experiences is part of cvs. Dr. Feldman considers stress is a
major contributor to it. With our son having Tourettes syndrome, stress is part
of his make-up.

One issue Dr. Feldman brought up early on was pot use. When my son said he did
smoke at least once a day on a regular basis for anxiety as well as nausea, Dr.
Feldman suggested that the effects of pot could begin to cause the very symptoms
it's being taken to avoid. He asked my son if he would be willing to stop using
pot for 6 weeks to rule it out as a cause of his (at least) weekly abdominal
migraine episodes and prescribed klonopin wafers to use while he's weaning
himself off pot. My son agreed to abstain until he sees Dr. Feldman again in 6
weeks. He smoked the last of his pot last Tuesday and while he has had to take
zofran for nausea almost daily during the past week, he has not had any
abdominal pain or vomiting. I would say that's pretty remarkable for him. I
don't know if the nausea and anxiety lessen somewhat as time goes by with
continued abstinence. Hailey or Mary do either of you know?

Another thing that came up at the meeting was the use of suboxone as a pain
management medication. My son has been using it for a number of years now since
getting rebound from Stadol NS. Dr. Feldman was interested in how well it
worked. It works pretty well a lot of the time. And even when pain breaks
through, it prevents visits to the ER.

Did anyone watch Anderson Cooper 360 last night? He's had a series all week
about legalizing pot but last night's program had 2 brief interviews. One with
Melissa Etherege who used pot during her chemo treatment 5 years ago and still
uses it. She said it was wonderful for her cancer needs. The other was an
unknown Bipolar woman who used an unlimited amount of medical pot for anxiety.
She said that while the pot made her feel better for the first few years, by the
3rd year of unlimited use, the pot made her anxiety and depression worse and she
became hooked on it. Something then was said rather quickly - that pot worked
well for physical ailments with symptoms like nausea and pain but cauld cause
extended neurobiological problems for people with mental disorders. I was
waiting for something to be mentioned about cannabis toxicity but it never came
up.

So there you go. My son really misses it but is staying off the pot, at least
for now. Thank you, Tina, for recommending Dr. Feldman. We had never heard of
him before and had no idea he shared the office at Cedars with Dr. Fleisher at
one time.

I'll give updates as times goes on.

Linda

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