What does the Depakote do? Does it keep the CVS or the migraines from
coming on? You know there's been a few times when right before bed
she's been on the potty and I remember thinking to myself that she
just didn't look right around her eyes, kind of shallow and sunken and
then that night she would wake vomiting. She's developmentally
delayed so she can't really relay any kind of feeling coming on
however she had told me that she is dizzy and her head hurts at times.
How do you know if its Abdominal migraines or CVS?
Its so great to finally connect with people who have the same issue!!
Thanks so much!!
Lorrine

--- In cyclicvomitingsyndrome@yahoogroups.com, kerii18 <no_reply@...>
wrote:
>
> --- In cyclicvomitingsyndrome@yahoogroups.com, "lorrine_peruzzo"
> <lorrine_peruzzo@> wrote:
> >
> Hello, yes my son is 9yrs old and has CVS, hes had it since he was an
> infant, he has both Adominal migrains and head migrains. Anything
> can set it off, Holidays, excitement, anxiety, likeing/hating school,
> worrying about things, especailly being afraid of getting sick again.
> My son has a GI specialist and a Neurologist... hes been on Depakote
> since they finally diagnossed him about a year ago. They gave him
> supository's and pills to stop the nauseau. Its been our miracle
> drugs. Just let me know what you want to know... I will try to help
> you with what I can.
>
> keri, kerii18@...
>
>
>
> Hello,
> > I am new here, our daughter Katie is 7 yrs old and has a rare
> > chromosome abnormality called Tetrasomy18p. She has been doing
> > something odd for over a year now in that she will wake in the
> middle
> > of the night(usually 3 or 4 am actually) and start vomiting, this
> > lasts until we can get an anti nausea med in her (gravol,dramamine)
> > and that will usually stop the vomiting after an hour or so. Without
> > the med she is vomiting every 10 mins. She will complain about
> being
> > dizzy. She has had an overnight EEG and it showed some mild rare
> > spiking on her right side. The Neuro at first thought she was
> > possibly having night seizures but now believes she could possibly
> > have CVS.
> > I am getting a consult with our Gastro dr. early next month.
> > I did myself have a mild case of CVS as a child and now have
> migraines
> > periodically.
> > Has anyone ever heard of abdominal migraines?
> >
> > Also we are doing a fund raiser to get Katie an Autism Service dog.
> > We have hopes this dog in addition to keeping her safe while we are
> > out also notify us in the night when she has these vomiting
> episodes.
> > She also tends to get up and walk around at night.
> > my web page for the fund raiser is here:
> >
> > http://clients.teksavvy.com/~lorrinep/
> >
> > I would appreciate if you could have a look and if you can't donate
> > then maybe pass it along.
> >
> > Well I just wanted to introduce myself and our Katie and hope to
> learn
> > a lot from this board that may help her!!
> >
> > Thanks!!
> >
> > Lorrine
> > Mom to Katie T18p 7 yrs, Alex 6 yrs.
> >
>