It is a great event- at a very beautiful spot! Unfortunately we will miss this
year because it is scheduled exactly when my son is due for his 7 week cycle : (
Mimi

-------------- Original message --------------
From: Vicki <mothrotwins@...>
This is an annual walk event we have gone to for CVS , this week in Connecticut,
Oct . 18th.....by the Koch family....it is nice to meet others with it and my
daughter Sarah has gotten some comfort from meeting others in the same
boat....more info is in the CVSA website.....or CVSWalk@....

Walk to
STOP THE CYCLE
of
CYCLIC
VOMITING
SYNDROME
S
DIRECTIONS TO SHERWOOD
ISLAND STATE PARK
WESTPORT, CONNECTICUT
From I-95: take Exit 18 to access the
Sherwood Island Connector. Follow the
Connector directly into the park.
From Rte 1: take the Sherwood Island
Connector in Westport. Proceed past the
I-95 entrance/exit ramps directly into the
park.
From Route 15 N: take Exit 41
and proceed south on Route 33 to Route
1. Follow Route 1 north to the Sherwood
Island Connector in Westport.
From Route 15 S: take Exit 42 and follow
Route 57 south. Go left onto Route
33. Proceed south on Route 33 to Route
1. Follow Route 1 north to the Sherwood
Island Connector in Westport.
Saturday, October 18, 2008
Satuaturday, October 18
2:00PM
(Registration 1:00PM)
1.5 or 3 Miles
Sherwood Island
State Park
Westport,
Connecticut
--- On Tue, 10/14/08, GramaDebi Savage <gramadeb2@...> wrote:

From: GramaDebi Savage <gramadeb2@...>
Subject: Re: [Cyclic Vomiting Syndrome] Re: Intro and Question
To: cyclicvomitingsyndrome@yahoogroups.com
Date: Tuesday, October 14, 2008, 7:26 PM

Amy, we all get all the posts to the group no matter whose question is being
answered.
Thanks for your input. Bless you!
debi

On Tue, Oct 14, 2008 at 10:04 AM, Amy Silas <oklamoontears@ yahoo.com> wrote:

> I'm not sure that this was sent to the person you intended it to be sent
> to. I am Amy and I have recently joined the Yahoo group. My husband is the
> CVSer and has recieved his diagnosis from Dr. McCallum at KUMC.
>
> Just thought you might want to recheck who this email was intended for.
> Thanks.
>
> Amy
>
> --- On Tue, 10/14/08, ohgr8nowwhat <OneSmartCooke@ gmail.com<OneSmartCooke%
40gmail.com> >
> wrote:
>
> From: ohgr8nowwhat <OneSmartCooke@ gmail.com <OneSmartCooke% 40gmail.com> >
> Subject: [Cyclic Vomiting Syndrome] Re: Intro and Question
> To: cyclicvomitingsyndr ome@yahoogroups. com<cyclicvomitingsynd
rome%40yahoogrou ps.com>
> Date: Tuesday, October 14, 2008, 2:04 AM
>
> Debi -
>
> I am so glad you found us. I hope we can be of help to you!
>
> We were able to get a correct diagnosis for my two children through a
> GI who treated CVS. Basically all tests are run to make sure it
> isn't anything else. Once everything else has been ruled out, you
> are then given the CVS diagnosis. The CVS website would be the first
> place to start to see if there is a GI in your area. If there isn't,
> I would call and make an appointment for a FREE consultation. During
> the consultation, you can ask if the Dr. if familiar with and has
> treated CVS.
>
> It seems like everyone here has a different medication treatment to
> get these episodes under control. The basic philosophy is to keep
> you asleep until the cycle breaks. While you are alseep, someone
> should be making sure you are hydrated (if tollerated) and are able
> to go to the bathroom when needed. Hydration during the episodes is
> the monster to combat. If you are dehydrated, it will make the
> episodes worse and you would need to go to the ER to get IV fluids.
> The ER info. should be on the CVS website.
>
> www.cvsonline. org
> http://www.cvsaonli ne.org/CVSAResou rceCenter. htm
> http://www.cvsaonli ne.org/CVSAAdult s.htm
>
> I hope this helps! If you have any other questions, please ask!!
>
> Terry
>
> [Non-text portions of this message have been removed]
>
>
>

--
<3<3<3<3<3<3< 3<3<3<3<3< 3<3<3
gramadeb2@gmail. com
Princess Debi Savage
Daughter of THE KING OF KINGS

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