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Wondering if anyone has suggestions   Message List  
Reply | Forward Message #1564 of 1869 |
Re: Wondering if anyone has suggestions

I also have gastroparesis along with the CVS. I get a lot worse when
my period comes around too. I have started on birth control pills to
help, but I haven't noticed much of a difference yet. I don't know if
the doctor giving your wife the depo shots talked to you about this,
but my sister used the shot for 3 years (got it every 3 months) and
it caused massive bone density loss. She is only 24 and is taking
meds for osteoporosis. I use zofran and phenergan for nausea. The
zofran doesn't work as well for me. I have a close friend that also
has gastroparesis among other things, and she has said that marinol
is great for nausea. Sorry I couldn't help much!

Holly

--- In cyclicvomitingsyndrome@yahoogroups.com, "malo7913"
<malo7913@...> wrote:
>
> Hi, I am pretty sure my wife has CVS. She is a type 1 diabetic who
> has been diagnosed with gastroparisis. While we know that she does
> have gastroparsis, I think she also has CVS. One week a month,
> centered around her period, she is hospitalized due to intense
> vomiting (6-10 times an hour). The other three weeks she is symptom
> free. We have tried many different medicines to attack the
vomiting,
> and also approached it from the other side and tried to stop her
> period. She tried taking birth control pills to stop it, but that
did
> not work. She is now getting a depo shot every 6 weeks (the average
> women gets it every 3 months) but still has occasional spotting
during
> that week and the vomiting has not slowed down at all.
>
> I am rather angry that her GI dr did not even tell us about CVS. We
> also recently drove 6 hours away to work with a gastroparisis
> specialist which turned out to be a big bust.
>
> I guess my questions are does anyone else have CVS triggered by
their
> period (we have linked other causes to it, like infection, but the
> period is the one crippling both our lives and our daughters 1 week
a
> month). Were you able to do anything about it? My wife's ob/gyn
> seems rather conservative, and won't really even talk about a
> hysterectomy. We have no idea if that would help, but at this point
> feel like there is little for us to lose.
>
> Thank you for listening. I was not sure if I was getting too
graphic
> in my post, but I figure that it is a group that talks about
frequent
> vomiting, so I am guessing we all left squeamish behind years ago
=-).
>





Tue Oct 14, 2008 9:33 pm

pug_lover07
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Message #1564 of 1869 |
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Hi, I am pretty sure my wife has CVS. She is a type 1 diabetic who has been diagnosed with gastroparisis. While we know that she does have gastroparsis, I...
malo7913
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Oct 14, 2008
7:35 pm

I also have gastroparesis along with the CVS. I get a lot worse when my period comes around too. I have started on birth control pills to help, but I haven't...
pug_lover07
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Oct 14, 2008
9:33 pm

hi pug!: ) I have asked my Dr. regarding my period because every time i get my episode it's always in time of my period but the Dr. said that that has nothing...
acqualish_044
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Oct 15, 2008
2:43 am

I don't have CVS- my son does- (no periods)-- but at the conference near Boston this summer- the experts said CVS triggered by periods is common! so your dr....
mpizey@...
pizenstein
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Oct 15, 2008
11:35 am
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