Terry,

Thank you for responding! It's so good to hear from others who
understand!

I never really drink a lot of Gatorade. Maybe I will give that a try
=) Thanks for the idea.

My fiance ALWAYS comes with me to the ER when I have to go. I also
bring a print out of information, because the nurses will straight up
tell me that they looked it up on google. He is much more assertive
than me, so he's a HUGE help at the ER =)

I am starting to learn some of my triggers. I have some in common
with your son! Definatley getting too hot (lately even showers have
been hard) stress is a BIG one, lack of sleep, certain foods,I can't
tolerate exersice either, and agree that catching an illness is a big
trigger too. Sometimes I get warning signs, and sometimes I wake up
sick.

I hear sometimes that kids grow out of CVS, so I hope someday your
kids wont have to deal with this anymore!!

Hope you have a good day!

Holly

--- In cyclicvomitingsyndrome@yahoogroups.com, "ohgr8nowwhat"
<OneSmartCooke@...> wrote:
>
> Holly -
>
> Welcome to the group. I am so glad you found us. Living with CVS
> can be a nightmare for many. It is immportant to find others who
> understand and can support you. Don't hesitate to jump in and ask
> questions!
>
> I have two children with CVS and both present VERY differently. It
> has been over a year since my daughter had her last full episode.
> She has had the beginnings of 4 episodes but we have been able to
> stop them! My son had his last major episode in Dec. 2007. He has
> had two episodes start but we were able to avoid them with plenty
of
> meds. and fluids at home. For some reaon Gatorade has greatly
> decreased the severity of the episodes for both of my children.
> Weird and wild but true.
>
> Many Dr.'s don't believe CVS even exists so I am quite surprised
and
> thankful you were diagnosed. Sounds like you need a new GI,
though.
> You need someone who is going to listen to you. You know your body
> best and what can help you. You are your best advocate! If you
have
> a family member or a friend who can be an advocate for you during
the
> episodes and in dealing with Dr.'s, that would be incredibly
helpful
> for you.
>
> Do you know yet what your triggers are?
>
> My daughter does not have any triggers. We have no clue. She will
> wake up around 4am or 7am and start vomiting. No warning.
>
> My son has MANY triggers so life for me watching him is a balancing
> act. Here are his triggers...
> Lack of sleep
> Illness
> Dehydration
> Exercise
> Getting too hot
> Rough housing
> Acid Reflux
> Migraine
>
> I am sure I missed something in there but I think you get the idea.
>
> Terry
>