I know that all of us feel pretty much the same way about CVS but can
we please avoid using profanity in these postings? There are children
that read these posts. Thank you.


--- In cyclicvomitingsyndrome@yahoogroups.com, Ariann Seeley
<seeleyariann@...> wrote:
>
> Thanks so much for responding. Damn it I hope I can skip just one
months episode. So you take Clonapin? What dose? I have a doctor's
appointment on thursday so he can look clueless and give me more shit
that doesn't help. I'm in Texas. Know anyone here who can help me? I
can't keep a regualr job, this blows!
>
>
> ----- Original Message ----
> From: h_slowik <h_slowik@...>
> To: cyclicvomitingsyndrome@yahoogroups.com
> Sent: Monday, April 21, 2008 3:45:33 PM
> Subject: [Cyclic Vomiting Syndrome] current meds
>
>
> my diagnoses(dig. in 95'suffered for years in er's w/ unknown
> abdomianl
> itis of some kind everytime. i'm now 30yrs old) are severe cvs and
> abdominal
> maigraine. I was told i have one of the more severe cases that the
> GIdocs up at portland OHSU have ever seen . great. i'm thrilled.
> i've tried everything.and i mean every thing. i'm on my 3rd gasrto
> guy. seen a
> neurologist, naturpathic doc, chiroprator. acupunture.I must drive my
> primary doc
> crazy. but don't we all feel that way and like they dont give a fu-k?
> i still get sick every month for 3 days 2 of straight vomiting and
> bed ridden nausea. usually around my mcycle. so plan is from the new
> ohsu gi doc i see is too take miagraine meds and clonazapam for two
> weeks . little do they realize triptans are $300 and more so i don't
> take or buy them. so for now i pretty much take clonazapam 2 weeks
> out of the month and ativan when needed w episodes. when the hell are
> they gonna figure this shit out? sorry for cussing but my doc sits
> there and looks on the internet for similar cases my whole visit
> gives me and new triptan to try that clearly aren't avaialable to me
> and sends me on my way. and we are paying for this kind of care. it
> totally pisses me off that this disease is not recognized by the gov
> or social security. every where else in the world does. ah! i just
> want to let all the parents out there who have a child w this disease
> to know that you are not alone. i know it seems like such a
> nightmare. just cherish the well days. that is what i do. the waitng
> game of it all is so hard. not to get out of the back of your mind
> and everyone around you seems to have the answer. do they have medical
> degrees? do they live with it? is it there body that gets taken over?
> they may watch but
> they don't know.the hot hot showers, hours of fluid gorging and
> expelling.er visits of awful hopsital people, they can't even
> fathom.our agony. hope. there is an answer out there for us
> somewhere.hope yours skips this month i'm hoping mine does!!!!!!!!
>
>
>
>
>
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