Thanks so much for responding. Damn it I hope I can skip just one months
episode. So you take Clonapin? What dose? I have a doctor's appointment on
thursday so he can look clueless and give me more shit that doesn't help. I'm in
Texas. Know anyone here who can help me? I can't keep a regualr job, this blows!


----- Original Message ----
From: h_slowik <h_slowik@...>
To: cyclicvomitingsyndrome@yahoogroups.com
Sent: Monday, April 21, 2008 3:45:33 PM
Subject: [Cyclic Vomiting Syndrome] current meds


my diagnoses(dig. in 95'suffered for years in er's w/ unknown
abdomianl
itis of some kind everytime. i'm now 30yrs old) are severe cvs and
abdominal
maigraine. I was told i have one of the more severe cases that the
GIdocs up at portland OHSU have ever seen . great. i'm thrilled.
i've tried everything.and i mean every thing. i'm on my 3rd gasrto
guy. seen a
neurologist, naturpathic doc, chiroprator. acupunture.I must drive my
primary doc
crazy. but don't we all feel that way and like they dont give a fu-k?
i still get sick every month for 3 days 2 of straight vomiting and
bed ridden nausea. usually around my mcycle. so plan is from the new
ohsu gi doc i see is too take miagraine meds and clonazapam for two
weeks . little do they realize triptans are $300 and more so i don't
take or buy them. so for now i pretty much take clonazapam 2 weeks
out of the month and ativan when needed w episodes. when the hell are
they gonna figure this shit out? sorry for cussing but my doc sits
there and looks on the internet for similar cases my whole visit
gives me and new triptan to try that clearly aren't avaialable to me
and sends me on my way. and we are paying for this kind of care. it
totally pisses me off that this disease is not recognized by the gov
or social security. every where else in the world does. ah! i just
want to let all the parents out there who have a child w this disease
to know that you are not alone. i know it seems like such a
nightmare. just cherish the well days. that is what i do. the waitng
game of it all is so hard. not to get out of the back of your mind
and everyone around you seems to have the answer. do they have medical
degrees? do they live with it? is it there body that gets taken over?
they may watch but
they don't know.the hot hot showers, hours of fluid gorging and
expelling.er visits of awful hopsital people, they can't even
fathom.our agony. hope. there is an answer out there for us
somewhere.hope yours skips this month i'm hoping mine does!!!!!!!!





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