--- In cyclicvomitingsyndrome@yahoogroups.com, "seeleyariann"
<seeleyariann@...> wrote:
>
> Hi. I am a 25 year old woman, and I have had CVS for 3 years. I
googled
> my own diagnosis after two years of misdiagnosis. My doctor knows
> nothing about CVS, but after ruling out everything else, he
believes
> that I do have it. I know I do of course. The problem is that he is
> very unfamiliar, so it feels like I have to tell him what we should
try
> next. I have no insurance, and have amassed about 20,000 dollars of
> hospital debt. I have been through the gammet of accusations, dirty
> looks..I dread going to the ER for fear of how horrible I know they
> will treat me. I am taking Zofran and Ativan. I have been
purchasing
> Maxalt, although it doean't seem to help. I get my attacks about
once a
> month, but sometimes more frequently. They always last for about 3
> days. I don't know anyone else who has this, and I have lost most
> friends I had before. It's very lonely, and I pray every night that
God
> will take this from me. I was hoping to find someone to help me.
>
try a new doc and the hospital could waive some cost for u they did
for me. go to a specialist and get a good doc. and i been through 3
gi
guys and still drive them all crazy. what state do u live in? ever
try medicinal nausea meds? really helps me! university hospital near
u?
I hate goin to er too. nurses piss me off. their mean if you have
insc
or not trust me i dealt w it both ways.family are the only ones who
seem to ever help and i've burned them out . people don't
understand . gotta get out there. got to church people will help u.
depression meds never helped me and zofran didn't help my nervous
anxious vomiting. it doesn't really work on anticipitory vomiting that
i experience. look up dr. david fleisher at the u of michigan he
is the leader on our disease. hope u are well stay calm worrying
makes us sick. hope i helped u. we can try to help eachother . plus
it's nice to have some one who understands!