Hi. I am a 25 year old woman, and I have had CVS for 3 years. I googled
my own diagnosis after two years of misdiagnosis. My doctor knows
nothing about CVS, but after ruling out everything else, he believes
that I do have it. I know I do of course. The problem is that he is
very unfamiliar, so it feels like I have to tell him what we should try
next. I have no insurance, and have amassed about 20,000 dollars of
hospital debt. I have been through the gammet of accusations, dirty
looks..I dread going to the ER for fear of how horrible I know they
will treat me. I am taking Zofran and Ativan. I have been purchasing
Maxalt, although it doean't seem to help. I get my attacks about once a
month, but sometimes more frequently. They always last for about 3
days. I don't know anyone else who has this, and I have lost most
friends I had before. It's very lonely, and I pray every night that God
will take this from me. I was hoping to find someone to help me.