I have noticed that Sarah , my 10 yr old with CVS , 3 days a month...seems to
have developed a tic disorder also now which is seen with noise making in her
throat and some movements.....like rubbing her nose with both hands.....

Any other CVS kids with tic disorders?

ohgr8nowwhat <OneSmartCooke@...> wrote:
My two children have CVS. The best thing for the kids have been on
daily Prevacid. Since being on daily Prevacid, their episodes have
become spaced out more. For episodes, my son (11) takes Zofran and
Benadril. My daughter (8) takes Zofran. My son drinks
Gatorade/Propel/Rain for the electrolites, especially for sports or
physical activities.

We tried to take my daughter off the Prevacid and the episodes
started up again. Even reducing her amount brought on episodes more
quickly and with more vomitting.

My son on the other hand has had his episodes worsen. We believe the
medication amitriptyline that he was on for headaches/migraines, made
the episodes worse and worsened his acid reflux. We have recently
changed his medication to Diovan in hopes this will stop the daily
headaches, control the migraines and decrease his acid reflux. We
have noticed a significant decrease in his acid reflux and have
decreased his Prevacid as well.

Since being on Prevacid and a migraine medication, we have noticed
that the CVS does not trigger a migraine anymore. Many times, a
migraine does not trigger a CVS episode either. We have also noticed
the acid reflux does not trigger CVS anymore. I feel adding the
Gatorade while my son is doing sports or physical activity has helped
immensely. We also allow him to drink ginger ale and/or Gatorade
when he has an upset stomach.

Yesterday, my daughter had an episode. Her episodes are mild. We
gave her ginger ale and Zofran when she was nauseated. She never did
throw up! This is a first and we are so thankful for this small
victory!!

We keep an eye on my son's "triggers". I am probably over protective
but I am able to keep the episodes at bay by being observant and on
top of the "triggers". We have figured out loud noise can also
trigger a migraine which can trigger a CVS episode. We saw an
audiologist and were able to get him ear plugs for when there is loud
noise. We no longer take him into situations where we know there
will be loud noise (concert, Chuck E. Cheese, children's church club
night, loud people, etc.). We figured out he has extremely sensitive
hearing and has been diagnosed with Sensory Integration Disorder
(SID). We are now working with an OT on SID to desensitize several
things in order for him to cope better. If you want to know what all
his triggers are, I can let you know.

We have not been able to identify anything as triggers for my
daughter. I do notice she does have an upset stomach and sometimes a
CVS episode when we have positive stress (vacation, friends coming
over, grandparents coming, dance recital, etc.).

I hope this helps you!

Terry






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