--- In cyclicvomitingsyndrome@yahoogroups.com, "Christine Marks"
<4marks@...> wrote:
>
> Our 12 year old daughter was diagnosed Friday with CVS. We are seeing
> the group at Milwaukee (Dr. Rudolph). It's been 2.5 years since this
> started in earnest, but as most of you, I can trace it back to
> infancy. Right now she's in a mild stage of a seemingly endless
> episode. We've been in the er for iv fluids 2x in the past month.
> we're waiting for a clean EKG before we can start her on daily doses
of
> amitryptiline--hopefully soon. Does anyone have any experience with
> this? We've been giving her the 8mg doses of Zofran every 4-6 hours
> but it's hard to tell if it's helping. At least she's not vomiting
> constantly...small consolation. I'm searching for anyone about her
age
> who shares this curse. I think it would help her so much to
commiserate
> with a peer.
>
Our 9 year old has had CVS since age 4 and I am so blessed to have
found this site and you who understand. We finally got the correct
diagnosis around age 7 and we take Cyproheptadine on the on-set of
an 'attack' as we call it. It doesn't take it away, but lessens the
severity of the attack. We've tried Zofran but that didn't work for
us. I would love the chance for your daughter and my son to talk about
this with each other so they understand they are not alone. Just let
me know :)