Hi, I'm Kathleen, the 17 year old my mom was talking about.
If your daughter would like, I would love to talk to her some time.
I know it can be really hard ecspecially when there is no one you know
going through this, or it feels like no one else understands.
I know it really helped me a few years ago when I was able to talk to
someone else with cvs. Even though I was never able to meet them, it
was so nice to have someone to talk to. I think it helped us both alot.




--- In cyclicvomitingsyndrome@yahoogroups.com, "Christine Marks"
<4marks@...> wrote:
>
> Our 12 year old daughter was diagnosed Friday with CVS. We are seeing
> the group at Milwaukee (Dr. Rudolph). It's been 2.5 years since this
> started in earnest, but as most of you, I can trace it back to
> infancy. Right now she's in a mild stage of a seemingly endless
> episode. We've been in the er for iv fluids 2x in the past month.
> we're waiting for a clean EKG before we can start her on daily doses
of
> amitryptiline--hopefully soon. Does anyone have any experience with
> this? We've been giving her the 8mg doses of Zofran every 4-6 hours
> but it's hard to tell if it's helping. At least she's not vomiting
> constantly...small consolation. I'm searching for anyone about her
age
> who shares this curse. I think it would help her so much to
commiserate
> with a peer.
>