My daughter is 17 now and we've been where you are. The good news is
that she is so much better now. She hasn't been hospitalized or had a
really bad episode in about 18 months. Her doctor put her on Co Q 10
and L-Carnitine (you can read about the research on this at
www.cvsaonline.org ) and it has made a HUGE difference. Our family has
recently been through a lot of stress and she didn't have any reactions
to it at all from the CVS. I highly recommend trying the Co Q 10 and L-
Carnitine. Our daughter had problems with the amitryptiline, but she
did take Imipramine for some time, she is off of it now. We went
through a really rough time when she was 12-16, and at times thought
life would never be normal again. Hang in there, better days are
coming.


--- In cyclicvomitingsyndrome@yahoogroups.com, "Christine Marks"
<4marks@...> wrote:
>
> Our 12 year old daughter was diagnosed Friday with CVS. We are seeing
> the group at Milwaukee (Dr. Rudolph). It's been 2.5 years since this
> started in earnest, but as most of you, I can trace it back to
> infancy. Right now she's in a mild stage of a seemingly endless
> episode. We've been in the er for iv fluids 2x in the past month.
> we're waiting for a clean EKG before we can start her on daily doses
of
> amitryptiline--hopefully soon. Does anyone have any experience with
> this? We've been giving her the 8mg doses of Zofran every 4-6 hours
> but it's hard to tell if it's helping. At least she's not vomiting
> constantly...small consolation. I'm searching for anyone about her
age
> who shares this curse. I think it would help her so much to
commiserate
> with a peer.
>