Hi Kim,
Please go back thru all the previous e-mails and data base including
several years back. My daughter's life was turned around when she started using
Zofran. I think she might be better on some other meds.
Regards,
Ann
Kim Mangione-Middleton <kimmay117@...> wrote:
We're desperate! Emmie has been vomiting every 1-2 DAYS since we've
been home from the hospital! The Topomax preventative is causing
terrible neuro side effects and obviously NOT working, and 've been
having to give her rectal valium and compazine every other day at
least! Has anyone heard of acupuncture helping??? A friend sent me
info, but it only seems that its been used VERY little. We're planning
to travel to see Dr Li in Wisconsin, we just have no idea HOW to pay
for it! Any help is greatly appreciated! Emmie is having another
episode now!
---------------------------------
Never miss a thing. Make Yahoo your homepage.
[Non-text portions of this message have been removed]
We're desperate! Emmie has been vomiting every 1-2 DAYS since we've been home from the hospital! The Topomax preventative is causing terrible neuro side...
Oh I'm so sorry! Can you get her pediatrician to prescribe Zofran or
Ondansetron for her right away? Can you take her in to be seen, and then ask
for something...
Hi Kim, Please go back thru all the previous e-mails and data base including several years back. My daughter's life was turned around when she started using...
To respond to the Zofran idea... this IS what we use when she is hospitalized. However, the docs told me its only IV or IM ... how do you guys give it at...
Your physician should prescribe it and it should be used before the person is sick. Meaning when there is a sign of something not right happening (some...
When she starts feeling bad, give a dose of Zofran RIGHT AWAY -- it takes 15-20 min for the oral tablets to work, Jamie needs 2-3 8mg tablets when she takes a...
Thanks, Beverly. The Cyproheptadine was mentioned, but Emmie has several major heart defects so that's one we can't use unfortunately. I picked up the...
Ha I've finally figured out why we cant do the Zofran at home ... its oral. Emmie can take NOTHING by mouth - no liquids, no solids, nothing in between,...
At one point a local specalty pharmacy offered to take the zofran tabs and work them into a gel Jamie could apply to the inside of her wrists for absorption...
Hi, Have you ever tried suppository? I am an adult suffering with CVS and had my doctor prescribe me those for when I cannot take anything by mouth. They...
Also, Prescriptions that have helped me out during a full blown episode was: Ativan- for anxiety, also helps go to sleep Zofran- same Phenergan- to stop...
I am also looking into acupuncture. I've heard a couple of good ings about it preventing stomach illnesses. And yes, enough sleep is important. Last year I was...
took all day for neuro to return my 5 phone calls.. they decided to stop the Topomax and start phenobarb for prevention, and they've also stopped the compazine...
took all day for neuro to return my 5 phone calls.. they decided to stop the Topomax and start phenobarb for prevention, and they've also stopped the compazine...
I have never heard of phenobarb for prevention. Zofran has been the drug of choice but I don't know what is recommended during vomiting other than IV or IM...
Aww man... I was afraid you'd say that! ARGH!!! Zofran has been used as rescue measure while in the hospital, but it never seemed to work - although we keep...
Good luck with that. My daugher has been symptom free for about 2 years so I am a bit out of the loop on new things. Was the Zofran given IV? Please read...
Zofran, or the generic Ondansetron, is given at home in an orally
disintegrating tablet. It melts on their tongue. We give 8mg every 4-6 hours Kristine *Ü* ...
So sorry about all you've been going through.... Just wanted to share we did try the Fenergan once I believe (rectally?) and it put my son out-- (in this way...
Turns out the reason they stopped compazine is because the rectal suppository they gave her was a dose 5 times the recommended dose! Now I'm talking with...
We have also tried Topamax for Sarah , my 10 yr old twin girl who has it and it also had neurological symptoms that made her seem totally out of it ,...
My son has adult CVS. He took Compazine once and started seizing. The only thing that works is Phenergan via IV fluids and then follow up treatment at home...
I am an adult sufferer too - and the compazine gave me adverse effects as well. Phenegran does nothing to my attacks. Here is my personal regimine : 1 Lexapro...
... effects as ... Ativan ... hour - on ... full ... every 4 ... to "knock ... they start ... not. When I ... been ... room with ... Feldman had ... veins - ...
MY ADULT DAUGHTER HAS CVS AND I AM WILLING TO DO ANYTHING TO HELP HER. THIS HAS CAUSED HER TO HAVE NO LIFE. SHE CAN'T HOLD A JOB,OR TAKE AN INTEREST IN THINGS...
Hi Marilyn, My doctor is Dr. Edward Feldman at Cedar's Sinai Hospital in Los
Angeles California. If you visit the CVSAOnline.Org website they can give you a...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
Offline 
Send Email