It sounds like she has cvs to me. the problem is there are very few doctors who
know how to treat CVS. I have had it for 16 years now and im now 29.
I can say my problems never stop between bad episodes. I'm in so much pain and
sickness all the time, I take morphine for it. No doctor can say that if your
are ok between you don't have it.

From what you have said to my I looks like she dose have CVS.
Most studies or CVS have been done in Florida USA I would take a look on the uas
web sites you may get a doctor who knows what they are on about.
good luck and please keep in touch.

best wishes to your daughter.
----- Original Message -----
From: chris.list@...
To: cyclicvomitingsyndrome@yahoogroups.com
Sent: Tuesday, November 13, 2007 3:56 AM
Subject: Re: [Cyclic Vomiting Syndrome] Question for parents of child with cvs


Jamie said she's nauseous every day. She's 29, and the episodes hae ben
more mild in the last few years than they used to be. Not sure if it gets
worse as an episode comes on, we'll have to monitor it.

> Hi! My daughter was diagnosed with cvs by one of her doctors.
> Another doctors say she doesn't have it because she has liver
> disease (Autoimmune Hepatitis (currently not active)and Primary
> schlerosing cholangitis). When I read about cvs, her attacks sound
> alot alike. The doctor that says she doesn't have it is because a
> child with cvs is otherwise healthy and does not have any
> gastrointestinal problems. One thing that I have not seen in the
> posts is what my daughter experiences before an attack. She will
> for several days before an attack have constant mild nausea. Then
> after 2,3,or 4 days the big attack happens. She also gets around her
> bellybutton such severe pain that the er gives her morphine. This
> has been a pattern for her. Does anyone experience this or is the
> episodes with no warning? Her doc put her on Reglan (it makes the
> stomach open up to allow the food to pass) because he thinks the
> bile in the liver is backing up into the stomach and the stomach
> closes causing the food to backup. That is what he thinks makes her
> throw up.After a bad attack, she is in bed for usually 2 days, she
> doesn't eat and continues to have mild stomach pain. That is another
> thing different from cvs. Anyways, I thought I would post this
> message and see if anyone has any input or advise.
> Susan
>
>





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