Hi Lynn -

I personally have no problems with you being here - and if there is anything
I can do to help you get the word out about this horrendous disease you can
email me personally as well. I am an adult CVS Patient - diagnosed this year
after 4 years of trial and error by Dr's.

Nice to meet you!
Tina Starnes

_____

From: cyclicvomitingsyndrome@yahoogroups.com
[mailto:cyclicvomitingsyndrome@yahoogroups.com] On Behalf Of Lynn Mc.
Sent: Sunday, August 12, 2007 6:17 PM
To: cyclicvomitingsyndrome@yahoogroups.com
Subject: [Cyclic Vomiting Syndrome] New Here



I am new to this group, and I truly hope no one minds that I am here. My
best friend's 12-year-old son was diagnosed with CVS when he was 6 years
old. I've been watching her stuggle with this since then--stuggle with his
episodes, stuggle with how to help him, and struggle with blaming herself
for causing it. The doctor's say "no known cause" for the disease, and she
still has to look for one, and at times has felt it is her fault.

I am also a writer, and I am putting together an article on this disease for
publication. I have a few places in mind where I would like to sell it. I am
still working on the research. I've found lots of statistics,a nd of course,
I have Lori and Mike's experience to draw on. I've interviewed both of them
already. If it's not a problem with those of you here, I'd like to jsut get
to know a little more about how this disease affects patients and caregivers
by listening to what you say. But if that makes you uncomfortable, I will
leave the list.

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